Dale’s Story

Site created on November 22, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Today was my appointment and I got the best “bad” news a person could get 💕🙏

After 3 weeks of stress and waiting we finally have the answers we were seeking:

I do have MDS EB-2 (Myelodysplastic Syndrome aka blood cancer)which is the worst type to have and the type that most often converts to Acute Myeloid Leukemia (AML). On a risk scale 1-5. I am considered a 5 which is “Very High”. Additionally, Dr Zen said my genetic studies show many mutations which put me in that high risk category.

The good news is there were 5 lymph nodes in my neck that the Dr felt could be an additional type of cancer but they turned out to be benign! These lymph nodes literally saved my life as I would not have gone to the Drs without them.

Having buried my dad 4 days earlier I finally went to the Drs on October 30th for the lymph nodes that had been enlarged for the 2 months Dad was sick. On October 31 my PCP called and said I needed to see hematology that day. The hematologist did a bone marrow biopsy that day. On November 1st (my 55th Birthday) I received my first unit of blood. I thought my PCP was going to diagnose me with stress, grief, overload, etc but instead he ordered blood work that led to my MDS diagnosis.

Now, after a bone marrow biopsy, a unit of good blood and biopsies of the neck lymph nodes we finally have a diagnosis. It’s weird to be relieved to have blood cancer, but I am. I didn’t convert to AML and we have a good fighting chance at a cure. I could still convert to AML but Dr Zen is hopeful we have caught this in time.

I will do 3-6 months of chemo in Albany (7 days on 21 days off). During this time I will have all of the usual side effects of chemo except hair loss. I will also need blood and platelet transfusions in between. My Platelets, White blood cells and Red blood cells are very low now although not at transfusion levels.

I have some literature to read on chemo then on Monday December 3rd I will meet with a nurse practitioner to review the diagnosis and I will start my first round of chemo on Tuesday December 4th (7days on 21 off).

Additionally I will go to Dana Farber in the next two weeks for a consult. After chemo is complete I will have another bone marrow biopsy and will need a bone marrow transplant (or stem cell transplant) and will likely spend 4-6 weeks at Dana Farber. My blood relatives will be tested specifically to see if they match me as that is the best hope for cure. Fingers crossed we find a good match!

This will be a long road but God is good and I am blessed to have the best support system in the world. It's time to get busy kicking Cancer’s Ass!

Because I feel journaling is good for the mind I will be documenting my journey through this website. Feel free to drop by any time. Prayers accepted and appreciated 💕🙏🏼

Love to all
Dale

Newest Update

Journal entry by Dale Coronato

Dear Faithful Prayer Warriors,

Sometimes the yellow brick road leads you home to your family, and sometimes it leads you home to the Lord. It is with great sadness that we relay the news that our beloved wife, mother, sister, grandmother, and friend, Dale Lisa, gained her angel wings this morning at 9:45 AM. It brings us solace to know that she has been reunited with her parents, Bev and Joe, her great-niece, baby Maeve, and many other loved ones we’ve lost along the way.

Dale’s motto was #FightLikeAGirl, and she did not disappoint; she fought with everything she had until the very end. We knew a few weeks ago that Dale had relapsed, and that she was in for an even harder battle. She returned to Albany to re-start chemo, which took a heavy toll on her health. Additionally, her condition required that she spend long hours each day at the hospital receiving blood and platelets. Despite these new challenges, each and every one of her faithful prayer warriors gave her the strength to continue carrying on.

In the end, Dale did not let cancer win; she contracted a serious form of pneumonia that her weakened immune system was unable to fight off. The care team in the ICU at Upstate Medical University in Syracuse, NY kept Dale comfortable in her final days, while simultaneously providing her family with much-needed support. We will forever appreciate their care, kindness, and compassion.

We consider it a blessing from God that He afforded us the opportunity to gather loved ones from near and far to be by Dale’s side during this difficult time. It brings us comfort to know that Dale received a final blessing from her spiritual mentor and friend, Father James Walsh from St. Pius X in Loudonville, NY.

We would like to take this opportunity to thank each and every one of you for the constant prayers, well wishes, and support that you provided to Dale. We are grateful to those who brought joy to her throughout her life.

As faithful prayer warriors, rest assured that your prayers have been answered; although it is not the ending that we wanted, Dale is no longer suffering. She is at peace, and we will see her again… Somewhere Over The Rainbow.

~

"Over The Rainbow"

Somewhere over the rainbow way up high
There's a land that I heard of once in a lullaby
Somewhere over the rainbow skies are blue
And the dreams that you dare to dream really do come true

Someday I'll wish upon a star
And wake up where the clouds are far
Behind me
Where troubles melt like lemon drops
Away above the chimney tops
That's where you'll find me

Somewhere over the rainbow bluebirds fly
Birds fly over the rainbow
Why then, oh, why can't I?

If happy little bluebirds fly
Beyond the rainbow
Why, oh, why can't I?

 

 

 

 

 

 

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