Spent another 8 days in the hospital with pneumonia again this month. I have been home about 8 days, and have been fighting the cough again since just a few days after I got out. Last night I aspirated and have been coughing a LOT today, but it actually doesn't feel like it's getting worse just yet.
I am headed back to the Mayo the 17th of June. We're trying to organize a visit with ENT this time. I am going to see a local ENT on June 3rd, and we hope to be able to culture my sinuses. This last time I was sick, the CT sinus scan showed new holes in my sinuses which apparently are not helping my situation. The thought is that I'm harboring some odd bacterium in my system and, if we could just figure out what it is, we need to find the drug that will cure it.
Life post-transplant is certainly a daily adventure. I spend a lot of time in prayer to God talking to Him about trusting His timing, trusting His process, trusting His plans for me. Many times this is because I feel like I'm not catching on very fast, hahahaha! I'm sure God would be so pleased if he didn't have to teach me the same concept numerous times.
My children get out of school for the summer tomorrow, and I'm really looking forward to spending most of the summer with them. I should not have to be at the Mayo for very much of the time. I can't say I'm looking forward to the inevitable arguing and constant complaints about how "bored" they are. I am looking forward to "teaching" them the fine points of how to clean a house properly! Clarissa and Alec are both old enough to learn how to use the riding mowers and can start taking care of the lawn.
I have been thinking about spending one of my blog entries talking about GVHD, for the people who read this in hopes of finding answers about the process. I think I will do that tomorrow. My GVHD is mild, but I have it in my eyes, mouth, lungs, skin, muscles, gut, and probably liver. Right now the muscles and the skin are the most problematic. It's time to spend some time helping others with this part of the journey.
We have had a week of bad weather with tornado-producing storms. Tonight was no exception. I have been praying to God for His protection over our home and family, and tonight was no exception, either. I pray that your families are safe, too. In Jesus' name, AMEN.
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