I still have some CMV (virus) titer in my blood, so I must continue the two-a-day IV meds for at least 3 more weeks. However, when I do finish the CMV treatment, I would be just 3 weeks from coming home! Yay! My graft-vs-host disease rash has completely resolved. My skin has some odd=looking pigmentation changes which will probably not go away, but it's so nice not to be scratching all the time. (And I am thoroughly enjoying being able to brush my teeth again!)
I do have a few blood results which are out of normal range, but I see the doctor tomorrow and will find out their significance. I don't think anything is worrisome, but I also like to know what the tests mean. I like to know everything, bahahahaha! I don't think I'm driving anyone crazy just yet, so I'm doing pretty good. What I DO know, though, is that my CBC is showing tremendous improvement overall. My hemoglobin is at 9.6 (normal being 12-14), my platelets are at almost 100,000 (normal being 150,000 to 400,000), and my white count is up to almost 3.0 (normal being 4 to 10). I'm a little behind schedule on all these things, but the trend is definitely upward now (before it was up and down, and then it flatlined for a while). The good part about these numbers is that I seem to be tolerating the IV meds for the CMV--these meds often suppress the CBC numbers. So, another area where I give God the glory.
My mom got out of the hospital, for which I am very grateful to God. I'm thankful for all the people who prayed for her after she had her heart attack. She is tired, sore (they did a double bypass), and doesn't want to eat much, but HOME she is! I made her promise to get lots of rest and take it one day at a time. We'll see if she keeps her word. Tee hee.
I continue to have abdominal pain, which gets pretty severe at times. Last night when I prayed, I asked God for a reprieve of sorts. This morning when I got up, my stomach wasn't hurting. It didn't start hurting for about two hours, actually. What made me think of this topic is because my stomach is really hurting! So I'll put it in my prayers again, thank you God.
The weather in Rochester is quickly turning cool. I have enjoyed watching the leaves float away from the trees in various colors. Recently I learned that trees cut off the water supply to the leaves in the fall, after which the leaves fall off. God just thought of everything!
Today I ordered some long john underwear. I'm already wearing 5 layers of clothes--Scott says, "woman, you go through a week's worth of clothing in a day!" Have I mentioned recently that he does the laundry? And my immunosuppression guidelines include not wearing the same clothes or pajamas twice? :) Anyway, I'm perpetually cold, so I've been wearing two pair of pants and five layers of shirts. When I come to clinic for my IV meds, the nurses ask if I would like a heated blanket. I always say YES because it feels so good to be toasty warm!
One side effect of the transplant is that I don't like a lot of salt any more. This is a good thing, given my heart condition. To those of who don't know this about me, when I was younger I would put a pile of salt on my plate (just like one would do with ketchup) and dip my food into the salt! When I was pregnant with my first child, my husband was always hiding the salt from me. Now, the average food seems too salty. I've started buying low-sodium stuff! And another side effect is that I don't care much for sweet stuff anymore. I don't eat chocolate bars, I don't eat many sweet desserts (like cake or pie), and I don't think I've put a cookie in my mouth since the transplant. I do, however, still like Poppycock popcorn treats (kind of like a grownup Cracker Jack). I just don't like the pieces that have too much caramel on them, like the pieces which contain nuts.
I've spent quite a bit of time in praise and worship of God these past few days. Putting my Christian music on, praying quite a bit. I am so grateful to God that things are going so well with my post-transplant course. From Day 60 until Day 100, it's mostly maintenance. Keeping track of what the blood work is doing, but also continuing strict adherence to the immunosuppression guidelines. And I have gone from being a person who had a hard time remembering to take meds to being a person who rarely forgets them. It has been ingrained into my brain how necessary these drugs are: the immunosuppressants are one, but I also take a host of anti-viral, anti-bacterial, antibiotic pills. These meds are acting as my immune system until mine is up and running properly again (which takes about a year). Today I ordered some new masks, because I will need them for up to a year. I got the kind where I can wash them and insert new filters in them. Life moves forward, a day at a time. And I have definitely mastered the lesson: one day at a time. Well, maybe not mastered, but at least a very good grasp of the concept!!
A couple of days ago Scott and I had an entire day where it seemed we spent most of the time waiting. Waiting on the shuttle an extra long time (first time it came through it was full). Sitting in the doctor's office waiting on the provider to come in (took a really long time). There was something else, too, but I can't remember what it was. We decided God must have really wanted the two of us to have some one-on-one time just to chat. Or He was working on our commitment to be patient!!
Now that the 60-day mark is past, I'm about six weeks away from going home. I can't wait to get there and hug and kiss all my children, and see my family and friends! God continues to clear the path for me. I am grateful to Him. In Jesus' name, AMEN!!