Corben is such a beautiful four year old soul! He is very playful and full of life, but what makes him different than other children is his bone marrow failed. He was attending preschool and playing soccer just like any other four year old when he started looking pale, bruising easily and complaining of his legs being tired. One day his school nurse called to tell me that Corben's color was just not looking right. I scheduled an appointment to have his blood drawn thinking it would be a simple low grade anemia that we could fix with some iron supplementation. The doctor called us the next day and informed us that all of Corben's counts (white and red blood cells, hemoglobin, platelets) were all severely abnormal. The end of the call came and he instructed us to go straight to the ER at Texas Children's. That is where Corben's bone marrow failure journey began.
Corben was admitted to the Medical Center that night with the suspicion of cancer. The doctors at Texas Children's suspected leukemia, but he ended up testing negative for both leukemia and lymphoma. He was discharged from the hospital after four days, but with no answers. For the next four months he spent twice a week at Texas Children's getting his blood drawn and completing platelet and blood transfusions when needed, which was often at least once a week. During this time the doctors completed test after test after test and still had no definitive answer to his disease.
After all the tests came back negative, the doctors decided to complete an analysis of his genetic structure. It seems that Corben does have a few genetic markers/mutations that science does not have the answers to. It is so amazing how God works. Our genes are so advanced and complicated that science has not caught up with God. For example, one of his genetic changes that was found is right next to the gene that science knows causes the worst leukemia a patient can have; however, science does not know what the mutation on Corben's gene does. We may one day have the answers, but for now we just have to rest in the peace of knowing that God is in control. None of this has surprised Him. He knows Corben's story.... He is the one that designed Corben!
Even though science does not have a specific diagnosis for Corben, we do know that he has some type of genetic bone marrow failure, meaning his body does not make enough cells and some of the cells his body makes look different. The treatment for bone marrow failure is chemo and a bone marrow transplant. Corben has matched with a donor that is selflessly donating his bone marrow so that Corben may live. Donors do not receive anything for donating. They simply do it out of the goodness of their heart. So now we are in the hospital and we will be here for the next 6 weeks. This is Corben's story!
I am so sorry that I didn’t post for a few days, but we needed to rest and just be still. Corben and I were so tired today that we slept until 11:20 this morning! BUT!! I have fabulous news! The doctors think that Corben is ready to go home Wednesday!! I know this is a big jump from my last post, but his numbers have skyrocketed and he is now engrafted... meaning the donor cells have found their way and are doing what they need to do. He is not out of the woods yet. We won’t know for a while if the transplant is fully successful, but so far the signs are looking good!!
We also had another miracle today! Corben was able to take all of his oral medications!! I was beyond frustrated last night at the oral medication situation, but God is good! The sun set and a new day began! We got creative this morning and he was able to take them without throwing up!! He will be taking four different medications for a while so it’s a big deal to be able to take them successfully!! Thank you everyone for your prayers over his oral medications! We feel all of the love and support! 🤗