Connor’s Story

Site created on August 15, 2018

Upon return from our fabulous Cabo vacation at the end on July, Connor started to not feel really well. He was not able to keep anything down, but was still his usual charismatic self. He started to throw up on Saturday, Aug 4. On Monday, Aug. 6 we went to Urgent Care, but they immediately sent us to the ER. at Valley Medical. They took blood, gave Connor fluids to rehydrate and sent us home with an antibiotic and anti nausea medication. We schedule a follow up with his regular doctor for the next Friday. As the week went by Connor got a fever and was still not able to keep anything down. Wednesday he complained of chest pain, but I associated it with a combination of the high fevers and possible anxiety. The next day Connor was having some difficulty breathing. Late Thursday night Bill and I took Connor back to Valley ER as he was really laboring to Breath and could not keep his eyes open. Upon arrival at Valley ER Connor’s blood oxygen level was very very low. So they tried to begin giving Connor oxygen through a breathing tube, then a mask. They ended up having to sedated him and intubated him. Their plan was to admit him to Valley ICU. Things moved rather quickly from here. When they took an X-ray it shoulder major fluid in his lungs. They were getting him ready to be taken by helicopter to a Harborview when he coded and had to shock him as his heart stoped and they lost a pulse. This was the scariest thing that Bill and I had ever heard. “Does anyone have a pulse, we lost his pulse, clear and then they shocked his heart. We beat the helicopter to Harborview. He was only at Harborview for about 5 hours when they transported him to UW Medical Center to have surgery. He had surgery and had 2 devices hook to his heart. One device is beating for the left side of his heart and one is taking blood from his heart and then adding oxygen and adding it back to his heart. Unfortunately these devices he can not remain on long term! They are running all kinds of tests to see if he qualifies for a heart transplant in the event his heart is unable to recover. He might need to have an LVAD or an Artificial Heart and then possibly transition to needing heart transplant. They are doing all that they can to give him time to heal. This is such a scary thing to happen to your baby. Because he is so young his body has been fighting so very very hard. He is completely sedated and they have been having to paralyze him so he can relax, rest and heal. We ask for your prayers of healing. Also we ask for you to pray for Chase as he moves in at college at Concordia University Irvine on Aug. 17. Bill, Michelle and Chase had planned to go down to California. But, Bill has remained in Seattle to be with Connor and Michelle and Chase left Wednesday morning, Aug. 14 to move Chase in a CUI. Each day there are mixed emotions as Connor has good moments along with set backs. We ask for your continued prays! We can not thank everyone enough for their payers of healing. This is going to be a very long journey for us all. Connor must relax, rest and heal in order to be considered for the next steps towards recovery. Instead of trying to send 30 plus texts with updates each day several times a day and not being able to reach out to everyone who cares for and loves Connor and our family. We have created this Caring Bridge site for our family and friends to come to for updates and to send prayers and well wishes. Please know how much we love each and everyone of you!

Newest Update

Journal entry by Bill & Michelle Murphy

Connor had an appointment with his cardiologist appointment last week. His blood work came back showing that all of his numbers have improved and are looking amazing! They are normal or very close to. He had an Echocardiogram done and we just received news that he can discontinue wearing the Life Vest. Connor is so so happy to get it off. His ejection fraction showed 64%. Which is awesome!!! Typical ejection fraction of the heart is between 55%-70%. We were waiting for the left side of his heart to heal and it has! Praise God! My heart is happy! Connor will need to continue to take 3 different medications and have routine appointments with his cardiologist but we will take that. We continue to have OT, PT and Speech therapists come to the house 2 days a week. Connor is making progress. He can now slightly raise his toes on his right foot, the leg with Drop Foot. He does his therapy and exercises daily and he is getting stronger. He will need to continue to wear the brace on his right leg, to keep it straight and help him walk. The brace also makes it so the he does not have to lift up his leg when he walks. He needs to use a cane to keep him stable and for walking outside of the house. While at home he typically does not use the cane or brace as there are enough things around for him to grab on to if he stumbled. But he has to remember to take it slow and focus so he doesn’t! Of the therapies that Connor does each week, his Speech therapy is the most tiring. They work on different strategies to help him with focusing, memory, concentration, retention and all things cognitive. As I watch them work, I can almost see Connor’s brain functioning. He often needs to stop to think about how to do the tasks he has been challenged with. It’s very interesting. He is making improvements and it’s fabulous to see. We are still waiting for our insurance to approve Cardiac Rehab. That will be his next step in getting his strength back. He will be closely monitored while he increase the intensity of his exercises. We are hopeful that that should start in the next couple of weeks and that he can stop OT, PT, but keep working with his Speech Therapist. This is our hope and pray right now. He needs to get his strength back and work on cognitive issues before he can think about returning to work and school. It is our hope that he can try to take at least one class come winter quarter in January at Greenriver. Time will tell. He will need to ease back into things. I know that it is extremely difficult on Connor as he wants to get back to how things were. We know it’s all possible. It may take additional time and things may be a bit altered but close to the way they were!We see blessings daily and are 😀 We appreciate everyone’s prayers, support and help. We can not thank you enough! Love you all!♥️
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