Colleen’s Story

Site created on February 18, 2019



On January 24, 2019, Colleen had a seizure while at work and was taken to Shore Health in Easton, MD. She had no history of seizures and after an overnight stay in the hospital and a series of tests, it was discovered that Colleen has a 3 cm mass on the right side of her brain. Colleen was released and has been staying in her dear friends  carriage house in Easton, MD. Colleen has an excellent team of doctors on her side and on February 7th, a craniotomy was performed by Dr. Kahlid Kurtom, one of the top Neurosurgeons on the East Coast. The surgery was to take 4-5 hours and after 2 hours, Dr. Kurtom saw that the mass was resting on the motor cortex, making the removal of the mass tenuous as the potential for causing paralysis was simply too risky.

Since then, Colleen has been regaining her strength and recovering from the surgery and on Feb. 18th had the staples removed from the surgery site. Her spirit is typically Colleen....brave, positive, questioning, and eager to get to the bottom of what is going on! It has certainly not been without the expected challenges, but she is surrounded by her awesome husband Jim, family, and her many friends who are chomping at the bit to do anything she needs. Her dogs, Pablo & Pearl are staying at their house in Cambridge and Jim's Dad, has been helping with them when Jim is either at work or with Colleen. Maureen, Colleen's Mom, came from South Carolina post surgery and stayed with her for a week and a huge team of Colleen's friends & family have kept Colleen company during the day.

Moving forward, the plan is to use Caring Bridge as a tool to keep her web of friends & family updated on her progress and needs as they arise. Her care team, which includes Dr. Kurtom, a Neurologist, an Oncologist, a Radiologist, etc. met on Friday, Feb. 22 to discuss the pathology of the tumor and the plan moving forward. At that time, it was determined that Colleen will have another craniotomy on March 4th to remove as much of the tumor as Dr. Kurtom can. Once Colleen has recovered from her 2nd surgery, she will get radiation treatments in Easton.

Many friends have been  sitting with Colleen while Jim is at work as they are still concerned about her having seizures. She has not had one since Feb. 11 and the medications that she is on seem to be doing their job! Our goal with this page is to share updates and to limit the number of well-intended and loving messages/inquiries/texts that she is receiving. PLEASE keep the positive love and encouragement coming though!! Colleen is so grateful for the love, well-wishes, and funny videos you all are sending.

As Colleen's journey unfolds, there will be a variety of needs that she will have and we may use Caring Bridge as a tool to set up meal delivery, transportation, and other needs as they become apparent. For now, please keep her in your thoughts and take a moment to send a message through this page. She is so grateful for the continued love, support, fabulous meals, visits, flowers, notes, and all around goodness you are sending her way!!



Newest Update

Journal entry by Colleen Brighton

Hi Friends!
Gosh it's been a long time since this has been updated and in most ways I think that is a good thing.  Since my last update January 24, I have been resting, healing, and quaranteening.  Like everyone else it has been tough not being able to see friends, family, and just the outside world in general.  No trips to the grocery store for me, shopping, traveling, or being around people unless it was getting bloodwork done or going to doctor appointments.  I am getting stronger and have ventured out in the past few weeks but am staying away from large groups and I am wearing a mask and washing my hands as much as possible.
I finished chemo in April and my medical team was surprised that I actually got through as much treatment as I did. Boy it was tough, the chemo cocktail they had me on was no joke. The last time I had my labs done was September 2nd and my levels were just barely normal.  Basically that's 5 months of recovery I needed just to get to the low end of feeling like a "normal" person.  
I still have side effects I am dealing with that I may not ever fully recover from . Cognitively I have some hiccups but I am staying positive and navigating my new "normal" as best as I can.  I am learning a lot about forgiving myself.  In the beginning, I was so hard on myself about memory loss and had negative talk internally about what I was unable to do.  I am still learning to stay in the moment and not dwell about what I couldn't do yesterday and what I may not be able to do tomorrow. I am also taking naps to recharge throughout the day to help fight the fatigue.
I am reaching out today to say hello of course but to also let you know I have started a fundraiser campaign selling t-shirts for brain cancer awareness.  I really wanted to put together a 5K event but of course Covid has put a damper on large gatherings.  I recently connected with a graphic designer and we have put together what I believe is a cool design to bring awareness for brain cancer.  All funds raised will go directly to the American Brain Tumor Association.  If you would like a t-shirt there are only 10 more days to purchase or make a donation. 
To make a donation you just need to pick a shirt, enter a donation amount, and remove the shirt from your cart. The t-shirts will be printed after the campaign ends and will come straight from the company.  See the link for more details.
Colleen's t-shirt fundraiser 
If this is the umpteenth time you are seeing info about the fundraiser, I apologize it will be over soon ;)
I hope everyone is well and I can't thank you enough for your love, support and prayers. 
Stay safe and I hope to see you all soon.
xo
Colleen

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