Here is finally the update we have been waiting and praying for. Clay's spinal fluid and bone marrow are clear and are back to normal for his age!! He is producing his own T cells and his bone density is good. The lung/breathing tests were better than last year. All good news. The best news us he doesn't have to have any more spinal taps or bone marrow procedures. He will be transferred from the peds Bone Marrow Transplant team to a Long Term Care team that will follow him for life.
He does still have high iron but it's not concerning to the Dr's. We will continue monthly phlebotomy treatments in SF and still go to MPLS every 6 months for scans.  
Thank you thank you to everyone who has been praying for him. It's been a long road but I feel that he is finally in a good safe place. God is great!