Clara’s Story

Site created on May 1, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. Please note that any money donated under the tribute section of this webpage goes directly to the website and not to the Moshenko's. If you wish to help the Moshenko's financially, please go to the Gofundme page which can be found under Ways to help section of this website. Thanks for your attention. 
Clara was born with a condition called Congenital Giant Nevus which requires excision of the Nevus due to risks of developing cancers and other complications. The earlier they remove the Nevus, the safer it is. At the same time, the skin is more pliable at this young age making it easier in some ways to begin the process. 
Removal of the nevus is a very convoluted and lengthy process that has several steps..The first step is to insert expanders which are silicon balloons that expand slowly with a saline solution, in order to grow new skin, so that when they cut up the Nevus, there is new skin to replace it with. 
What happened this week, is that she had the first surgery where they placed 4 expanders surrounding the Nevus in her back, so that they can start the process of creating new skin to then do the replacement of the Nevus. She had the surgery on Tuesday, April 28th, and has since been in  Los Angeles children Hospital. She was supposed to be there just overnight, but has had a difficult time recovering from the surgery.
The reaction to the expanders has not been as easy as expected. She has experienced a great deal of pain, and is very uncomfortable, In addition, she has developed an issue of  thrush  in her mouth and battled some dehydration. medication. We are hoping that she starts eating and drinking normally on her own. We can't take her home until her pain is under control, and she is drinking and eating on her own.





Newest Update

Journal entry by Rebecca Moshenko

I wanted to post one final update about Clara now that she is 6 weeks post-op! Overall, she’s doing great! We’ve made great progress since the recovery of her infection. She can now swim and resume her activities as a toddler pretty much normally. She has a follow up appointment in the beginning of August with her surgeon. She will be getting a custom compression outfit which she is to wear for the following year to assist the healing process along. At around the one year mark, she will have what should be her final surgery. 

 

As mentioned before, there wasn’t quite  enough skin at the time of the surgery. It is because of the lack of skin that the stitches ended up splitting open in the center leaving a big gash. This is the area that became infected. A big part of the following surgery will be to close that gap and make the scarring more subtle. 

 

Brett and I have decided to include pictures of what all this looks like. I’m sure this process has seemed rather elusive when relying solely on writing to understand the graphic components of it. Below we have attached a few images that may help you understand what we’ve meant by “tissue expansion” and the gap I just referred to. The last picture is a picture that was taken just yesterday. You’ll see the tremendous progress. If you look closely, you’ll notice some rough patches of skin. This is because a week ago she developed heat rash from being bandaged up 24/7. We have given her a break from the bandages for the rash to clear up. 

 

Thank you again for the outpour or love and support! We are a lucky family and she is a blessed baby to have so many of you thinking of her and praying for us on a regular basis. We do not take this act of service lightly! 

 

 

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