Claire’s Story

Site created on June 12, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Claire’s go fund me

https://www.gofundme.com/f/21f0174v40

Helps with tube feeding formulas, medical supplies and support for Claire’s journey

Claire’s meal train

https://mealtrain.com/l1y8y4

Helps so much since mommy is pregnant and the extra duties with cancer care make cooking a challenge

Newest Update

Journal entry by Dianne Nowicki


De. Kushner Approved a two week break for Claire to come home with her brothers and sister. 

We were her extremely fortunate to go home on a corporate Angels flight. It keeps Claire safe from contracting any viruses that she might on the commercial planes.

 It was such a beautiful experience and we are so grateful for the opportunity that corporate angels gave to us.

 I wanted to extend a big thank you to the supporters and go fund me. 

We Have to go to Phoenix children’s hospital and Banner Desert Hospital.

 they need us to pay our deductible out-of-pocket or we cannot get The care that we need. 

Blake was able to get his broken arm fixed and Claire was able to go and get her levels checked.

 it seems like her white blood cells responded to the pegfilgrastim, bone marrow stimulant, very well and her white blood count is over 22. her platelets and hemoglobin are also good - yippee! Claire is on a clean bill of health to be here with us at home for the little break. 

It’s been difficult for Kenny to watch the kids and work 12 hours so the house is a bit messy: this has me a little nervous while I’m home. “ you do what you can do” is my motto . Kenny has kept the kids happy and clean since I’ve been out, i couldn’t be more proud.

I think staying with the expert care of grandmas and grandpa half of the time has helped but the kids and Kenny. 

 We are having such a great time together playing with toys in the room.

it’s just the small moments of making meals together and hugs and kisses as a family that makes me feel the deepest joy. 

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