De. Kushner Approved a two week break for Claire to come home with her brothers and sister.
We were her extremely fortunate to go home on a corporate Angels flight. It keeps Claire safe from contracting any viruses that she might on the commercial planes.
It was such a beautiful experience and we are so grateful for the opportunity that corporate angels gave to us.
I wanted to extend a big thank you to the supporters and go fund me.
We Have to go to Phoenix children’s hospital and Banner Desert Hospital.
they need us to pay our deductible out-of-pocket or we cannot get The care that we need.
Blake was able to get his broken arm fixed and Claire was able to go and get her levels checked.
it seems like her white blood cells responded to the pegfilgrastim, bone marrow stimulant, very well and her white blood count is over 22. her platelets and hemoglobin are also good - yippee! Claire is on a clean bill of health to be here with us at home for the little break.
It’s been difficult for Kenny to watch the kids and work 12 hours so the house is a bit messy: this has me a little nervous while I’m home. “ you do what you can do” is my motto . Kenny has kept the kids happy and clean since I’ve been out, i couldn’t be more proud.
I think staying with the expert care of grandmas and grandpa half of the time has helped but the kids and Kenny.
We are having such a great time together playing with toys in the room.
it’s just the small moments of making meals together and hugs and kisses as a family that makes me feel the deepest joy.