Journal

Journal entry by Chris Weekly

Happy to report: impossible to distinguish today's MRI scans from the last round's. Dr Dietrich suggested we do one more in 6 months, before stretching the cadence to 9 months. So, I'll post again March 20, 2020. :)

It's a beautiful day! 😊
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Journal entry by Chris Weekly

Once again, nothing to report. Next scans Dec 11. Right now I'm v happy to be on my way to meet up w dad for dinner and a play, then looking fwd to a relaxing weekend, then my last week at Care.com before starting my new gig at Tapjoy a week from Monday. Onward and upward! Life is good. :)

Love and gratitude to you wonderful people who care. :)

C

Journal entry by Chris Weekly

Happy to report yesterday's routine scans were again ideal. Dr Dietrich showed me side-by-side comparisons of Friday's images w those from January (bc longer intervals for comparison would make any diffs appear more prominent). So my only complaint was the unusually long wait (the MRI queue was backed up, which made me miss a work concall I'd hoped to make) and the summer Friday Cape-bound traffic on the drive home. So grateful to have these non-issues / "first-world problems". Had a happy family movie night last night ("Hook", starring Robin Williams and Dustin Hoffman, finished watching together this morning w/ waffles and coffee). I just got back from a motorcycle ride, and am heading outside to paint the porch before we host Harper's birthday party up the street. Life is good.



Thank you all for being in my circle. Be well! 😊



Love,

Chris

PS Scan cadence remains roughly 3 months, ie September.

Journal entry by Chris Weekly

20150313 - 4:15pm - Dr Dietrich walked into the room with a big grin, saying "It all looks great!". Slowing MRI cadence to 3 months, so the next one is in June. 

These are becoming routine, making me wonder about ending my habit of posting here on CB after each scan. For now (meaning the next one - June 12) I will plan to continue to post cancer-related stuff here. http://www.chrisweekly.org continues to be the place where I (infrequently) share other things. 
 
Stoked to be headed home to have dinner w my awesome little family -- including dad in slightly-belated celebration of his birthday last month.

Have a terrific weekend, any/everyone reading this! :)

Love,
Chris


Journal entry by Chris Weekly

2015 is off to a great start health-wise, with clean MRI scans this morning (and a terrific ski trip last weekend). Looking forward to soccer picking back up. Big thanks to everyone who's been there for me and my family. Loads of gratitude and warm well-wishes back your way, to all of you.
Love,
Chris

Journal entry by Chris Weekly

Delighted and grateful that there's absolutely nothing of interest on today's scans. Even the tiny spot that showed up on the July scans is gone. So a clean slate; my next appt is in early Dec. Thanks as always for caring.

Any extra available good vibes, prayers, positive thoughts, love and well wishes, please direct towards my friends Karen and Steve, who are actively fighting the good fight against cancer and who don't have a reprieve right now like I do. Thank you.

Love,
Chris

Journal entry by Chris Weekly

Happy to report the scans show nothing of concern.
  
(A tiny spot of contrast -- under 1mm -- did appear on a scan on just one of the 3 axes, but Dr Dietrich said it's most likely just harmless radiation after-effect, which I've been told repeatedly is to be expected. Contrast spots 5x bigger than this can spontaneously appear and disappear, it's just part of how my brain's healing process works. It'd be nice if everything were completely static, but that's just not how this goes. I almost didn't bother to mention it, but some of you have asked for all the details, so there you have it.)

My next scan yet to be scheduled, but will probably be around the first week of October per my 8-to-10 week cadence. 

Summary: all is well. I'm having a great summer (beach, pool, motorcycle, concerts, and upcoming vacation week in NH, neighborhood block party, and 40th birthday poker tournament, etc). Hope you all are too! :)
Thanks as always for caring.

Love,
Chris




 

Journal entry by Chris Weekly

Best possible results: absolutely nothing of interest in the scans. No troublesome spots, and no changes to the scar tissue.

Sorry if getting notifications from this CB site causes anyone alarm. FYI my scans are every 10 weeks (next one scheduled for Wed July 30) so you can expect another update then.

Other than that, work is challenging and interesting, the girls are doing great, we love living in Duxbury where we've made new friends, Shawna's psychotherapy practice is booming, and life is good. Busier than we'd like, but overall very good. 

Yours, with Gratitude and Love,
Chris

Journal entry by Chris Weekly

I'm very happy to report, there's nothing to report. Dr Dietrich confirmed that it will take some more months yet before my brain gets back to 100% regarding energy and acuity, but it will happen. And health-wise there are no traces at all of anything amiss. We're moving to a 10-week MRI cadence instead of every 2 months. Next year it will probably be every 3-4 months or so. But not to get too far ahead of myself; clean scans, healthy and recovering brain, all is well. Thanks as always for caring! :) Love, Chris

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Journal entry by Chris Weekly

At MGH since yesterday at 3 or 4 pm, after 2 separate 3-4 night stays at Tufts. It all started w headaches and nausea around Nov 14. Came here to MGH from Tufts MC for 2nd opinion at Shawna's insistence. There's hemorraging behind my right eye that might be spontaneous or might be caused by a mass (hidden by the bleed). Still waiting on a bed. MGH seems more aggressive than Tufts, w a "let's remove it and see what it is" stance. So, I'm scheduled for an operation tomorrow morning with neurosurgeon Dr Curry and team. They're going to use a special MRI machine during the operation (1 of only 50 in the world usable mid-operation?) and seem confident about their skills and technology. My main complaint now is hunger; no dinner last night, no breakfast this morning, and still getting the runaround from staff here about it being ok to eat. Update: wahoo, I can eat. Will update status again in a bit. Thanks a ton for all the messages etc, I am very grateful for all the love and support.

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Chris’s Story

Site created on November 28, 2012

Thanks for visiting my CaringBridge site! 

This is the central place to check for updates about my battle with brain cancer. At times I have also used it as a blog, sharing my thoughts and feelings as they come. 

I really appreciate your support and words of hope and encouragement. Feeling connected to you awesome people makes a huge difference. THANK YOU!!



Love,
Chris

Back story [updated 20140514]:
In November, 2012 I was diagnosed with brain cancer. A large (fist-sized) tumor was completely removed from my right frontal lobe on November 29, 2012, but because it turned out to be a grade 4 GBMO, I am not "cured". Daily chemo (Temodar) with radiation (6 weeks / 30 sessions, Dec 2012 - Feb 2013), followed by chemo-only (5 days/month from March 2013 - Feb 2014) was the standard treatment. As of early spring 2014, it's worked perfectly. No sign of recurrence. I am still recovering from long-term side effects of radiation exposure and chemo (it may take a year post-treatment for me to get back to 100% -- or better!) but I'm now three months post-treatment and am doing fine. Unlike with some kinds of cancer, avoiding recurrence for N number of years doesn't mean it'll never come back. But if it does, they'll catch it quickly given my MRI scans every 10 weeks, and they're well-equipped to treat it if that happens. So, while no "cure" exists yet, because of my young age, strength, and otherwise good health, there is reason to hope the grim statistics associated with the initial diagnosis -- stats based on studies of people twice my age, many of whom forgo surgery or treatment altogether and whose life expectancy is way shorter than mine -- don't apply to me. My oncologists and I agree that I can and will survive and thrive while managing this disease and waiting for a permanent cure to emerge. 

So, not an ideal prognosis, mostly just "unknown, with closely-managed risks", but there are plenty of mitigating factors, and ample room for all-important hope, which I've got in spades. 



Please read my journal entries to get the whole background and ongoing story. This "background story" content fragment may fall out of date again, but I do plan to keep updating the main journal on a regular basis, especially if there is any news to share. 


Thank you so much for your support and encouragement, they are truly sustaining. Positive messages go a long way, but please, no condolences or pity. Thank you! :)


Lots of love,
Chris 

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