Charlotte Grace’s Story

Site created on December 23, 2019

Welcome to our CaringBridge website. This site will be used to update you all on Charlotte’s journey to beat Acute Myeloid Leukemia. She was diagnosed on December 20, 2019 after routine bloodwork and is currently being treated at the Hospital of the University of Pennsylvania.

Please note that any money donated to this site does not go to Charlotte. Instead, the Taylor family created a website on www.gofundme.com that is being used to support Charlotte financially. Just search “prayers for charlotte” and look for Charlotte’s photo from Warrington PA. Since Charlotte is likely to have fertility issues in her future and egg freezing is not covered by insurance, the financial support is greatly appreciated. Thank you for thinking of Charlotte and we cannot wait for her to get better!

Newest Update

Journal entry by charlotte schneider

Yesterday I had a follow up from my stay in the ER to discuss my vision loss. It was with a new retinologist who I absolutely love. Although he gave me incredible care, he gave me news that was a little disappointing. The blood clot in my right eye caused cell death, so my vision in that eye will not return. The good news is my left eye is perfectly healthy! Even though this was not the news I was hoping for, I am grateful to be in such good hands with my new retinologist and I am grateful that I am now stable. I can see out of the peripheral of my right eye, but I would say roughly 60% of the center of my vision is now a black circle. But I am not in any pain at all and my brain is slowly learning to adjust to my new normal!

I chose to go with a new retinologist because I was informed the vascular issues I had in my eye were evident for over a year. The small blind spots I had from over a year ago were only the beginning. I was frequently frustrated with my old retinologist and often left my appointments feeling unheard. My new doctors are unsure if this significant loss in vision could have been prevented, but it went brushed off and undiagnosed despite my expression of concern for the symptoms I was having. I do not hold negative feelings towards my old retinologist. Doctors are just humans like the rest of us. But I mention my story to remind everyone: you are your own best advocate. If you feel your doctor is not giving you the attention you deserve, fight for yourself. It very well may have been written in the stars I would lose a significant part of my vision at 23 years old. But this issue still went undiagnosed for over a year despite very regular visits with the retinologist. You are your own best advocate 🧡
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