Journal entry by blue jay —
Hi All,
Bluejay here in summer-y, monsoon-threatening Tucson. We hope you are well! Wind and I are both doing OK! Just today, after waiting since applying in April, Wind's insurance has agreed to support her requested transferal to the Mayo Clinic in Phoenix, where they have already told her that she is a good "candidate" for a transplant! She is happy, especially because she's been kind of in limbo regarding having a hepatologist or even a gastroenterologist at all since she told the other hospital, also in Phoenix, that she would like to transfer out. And when we met the opening Mayo Team in April we were both eased in mind and spirit by their "togetherness" and professionalism. Everyone seems to have such respect for this Mayo outfit. So we are both feeling hope about the future again. What a relief!
And mystically, for those of us who are alternative healthcare folks, this hiatus has been a good time for Wind to research and find and work with two young doctors in the UofA Center for Integrative Medicine who have helped to relieve a lot of her symptoms (especially her excruciating, roving, hand-foot-leg cramps) which are common with so many women and certainly anyone who has been diagnosed with liver failure. "Oh, I know what will work for you with that: "Magnesium SRT, a time-released Magnesium." Well it works almost perfectly for her and has helped her quality of life SO MUCH in this whole ordeal. It's one of the things that has given her energy to get out and do things again - and with freedom from pain. Other supplements they suggested seem to have almost cut her MELD score in half. (MELD = Measurement of End Stage Liver Disease) And same goes for the true help, healing and comfort Wind received when she was referred to a marvelous Ayurvedic practitioner right here in Tucson. If anyone wants her contact info for an appointment she is quite the healer and I'll be glad to send you her contact info if you like.
So anyway, enuff said. We are actually having some lovely days and nights here in Tucson all summer. And our spirits go up and down as always, but we are still, often, very much enjoying each other's and others' company. So give a shout if you'd like to visit or just call up. There may be some storms ahead, but the calm is a great blessing right now. Oh yes, and (with Wind's permission to post on this site) here's an interesting political link especially for democrats and all those deeply interested in peace and justice and the American Way... Take what you like and leave the rest!
Tim Wise Political Analysis
https://threadreaderapp.com/thread/1152930670093787141.html
Bluejay here in summer-y, monsoon-threatening Tucson. We hope you are well! Wind and I are both doing OK! Just today, after waiting since applying in April, Wind's insurance has agreed to support her requested transferal to the Mayo Clinic in Phoenix, where they have already told her that she is a good "candidate" for a transplant! She is happy, especially because she's been kind of in limbo regarding having a hepatologist or even a gastroenterologist at all since she told the other hospital, also in Phoenix, that she would like to transfer out. And when we met the opening Mayo Team in April we were both eased in mind and spirit by their "togetherness" and professionalism. Everyone seems to have such respect for this Mayo outfit. So we are both feeling hope about the future again. What a relief!
And mystically, for those of us who are alternative healthcare folks, this hiatus has been a good time for Wind to research and find and work with two young doctors in the UofA Center for Integrative Medicine who have helped to relieve a lot of her symptoms (especially her excruciating, roving, hand-foot-leg cramps) which are common with so many women and certainly anyone who has been diagnosed with liver failure. "Oh, I know what will work for you with that: "Magnesium SRT, a time-released Magnesium." Well it works almost perfectly for her and has helped her quality of life SO MUCH in this whole ordeal. It's one of the things that has given her energy to get out and do things again - and with freedom from pain. Other supplements they suggested seem to have almost cut her MELD score in half. (MELD = Measurement of End Stage Liver Disease) And same goes for the true help, healing and comfort Wind received when she was referred to a marvelous Ayurvedic practitioner right here in Tucson. If anyone wants her contact info for an appointment she is quite the healer and I'll be glad to send you her contact info if you like.
So anyway, enuff said. We are actually having some lovely days and nights here in Tucson all summer. And our spirits go up and down as always, but we are still, often, very much enjoying each other's and others' company. So give a shout if you'd like to visit or just call up. There may be some storms ahead, but the calm is a great blessing right now. Oh yes, and (with Wind's permission to post on this site) here's an interesting political link especially for democrats and all those deeply interested in peace and justice and the American Way... Take what you like and leave the rest!
Tim Wise Political Analysis
https://threadreaderapp.com/thread/1152930670093787141.html
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