Casey still has intermittent head pain most days. Wednesday’s MRI showed that Casey’s ventricles are a little smaller than before surgery. This could indicate that Casey’s shunt is draining too much cerebrospinal fluid, so a doctor adjusted Casey’s shunt to drain a little less fluid. This may reduce headaches.
Casey has been back at school since the end of November. He’s now taking 3 classes: Jazz Band, AP Language Arts, and US History. He has attended just over half of his class periods. The quality of his work is similar to before surgery, but his endurance is still very limited. He sometimes needs long breaks after as little as 15-30 minutes of schoolwork. We’re considering dropping down to 2 classes next semester. Casey’s goal is to stay on track to graduate in 2020.
Overall, Casey has observed that the pace of recovery has slowed. This is both expected and disappointing. It’s reasonable to anticipate that Casey’s energy and endurance may eventually approach pre-surgery levels, but the timeframe for that is probably closer to 2 years than 3 months. It’s challenging to adjust to new limitations and the new normal. It’s disappointing when doing homework or spending time with friends leads to a headache. And it’s a drag to be awake with head pain from 2-4AM. It’s frustrating to feel tired and need to lie down many times throughout the day.
We continue to be thankful every day for Casey's amazing medical care and for the love and support of so many people in our lives.