Carrie’s Story

Site created on September 17, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

In late August 2020, Carrie was diagnosed with AML: Acute Myloid Leukemia. A mass in her thigh and extreme pain took her to the emergency room on August 18th. After a blood test to determine a potential cause for her symptoms, she was subsequently diagnosed with blood cancer and admitted to the bone marrow transplant floor at Oregon Health Sciences University Hospital. (Coincidentally, this is the floor she worked on as an occupational therapist since January.) The next day Carrie started intensive chemotherapy, a 24/7 regimen, and remained in the hospital for continued treatment for 27 days. 

This all happened so quickly and was completely out of the blue! Except for the mass and pain in her leg, which developed overnight and continued to worsen over a matter of days, Carrie felt healthy and well. Prior to this, Carrie was working at the place she most wanted to work—based on the experience she had while in graduate school—doing a job she loved. She was hiking, doing Power Yoga, and settling into her newly purchased condo. 

Carrie’s good health and age bode well for her prognosis. AML is an aggressive form of leukemia, but it was caught early and Carrie’s body has responded very well to the first stage of treatment.  

Next steps include a return to the hospital for another round of chemotherapy in preparation for a bone marrow transplant. Carrie’s brother Rich will be the donor; he is a 100% match. The bone marrow transplant is slated for early December and Carrie will be in the hospital for 5 weeks. Upon release, it is recommended that patients have around-the-clock support for 3 months and she is planning to stay at her mother’s house. After this time, she plans to return to her home to complete recovery, regain strength and endurance, and rebuild her life. Carrie's oncologist told her to expect extreme fatigue following the transplant and that it is unlikely she will be able to return to work for a full year. She loves her job and this news was and continues to be sobering.

We will be posting updates as Journal entries on this page to keep friends and family informed about Carrie’s treatment and progress. Please feel free to post words of encouragement as a comment after Journal entries, or by clicking on Well Wishes (see menu bar on top of the page). Should needs arise—help with meals, rides to appointments, etc.— they will be posted on either the Ways to Help or Planner page. If you’d like to contribute to Carrie’s GoFund Me campaign, here is the link:   
https://www.gofundme.com/f/2bmbv-support-carrie?utm_source=customer&utm_medium=copy_link&utm_campaign=p_cf+share-flow-1

Any references to donations on this site are for Caring Bridge, not for Carrie; feel free to donate if you like. 

Thoughts and prayers for Carrie. 

Newest Update

Journal entry by Carrie Birrer

Dear family and friends,
It has been a while since I've written due to symptoms after transplant. I'm just beginning to feel a little better which enables me to actually be somewhat active during the day and most importantly eat and drink. Persistent severe nausea has been very challenging but as I wrote, that is beginning to ease and I'm feeling more like myself. My oncologist advises me to expect a 100 day recovery marathon after transplant and to date we are just over half way. As you can imagine, these are lonely times due to covid and cancer. Your continued love and support has truly made a difference. Part of me wants to savor each day and learn what I can from this time while another wants time to speed up, skip over these next months and arrive at summer when I anticipate returning to work. I spend a lot of time reading so if you have any recommendations, I'm ready!

I hope you and your loved ones are healthy and well.

Love, Carrie
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