Identified with an undiagnosed neuromuscular disorder. No known issues in utero nor birth.
Some abnormal MRI results.
All other tests norma
Site created on July 9, 2020
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting!
Current Status: undiagnosed neuromuscular disorder MRI was slightly abnormal with expanding white matter. ALL other following tests were normal. May still do a muscle biopsy test soon. Pending genetic study results still since fall 2019. And she takes daily doses of muscle relaxer throughout the day. Weekly physical therapy PT at home, plus monthly at the hospital.
She started bunny hopping a few months ago & small steps with help (yay!). We have AFO feet braces and a gate trainer/walker. She preferrs to bunny hop around super fast right now! Primrose daycare takes fantastic care of her - she is excelling there beyond what anyone imagined! She LOVES to go to school! She loves coloring and playing ball. Her favorite color is yellow.