Caleb’s Story

Site created on August 22, 2020

Caleb woke up with a headache in the early morning hours of August 18th, 2020. What seemed like a migraine did not subside over the course of the day or with any home treatments (both natural and OTC). We decided to take him in that evening out of an abundance of caution. Even the attending doctor at the Mott Children's ER through it was likely a migraine, but wanted to do a CT scan just to make sure.


He came back and shared information that rocked Caleb's world, and that of our entire family. At first, the indicated he had a brain bleed. Shortly after that it was a discussion of him have a tumor in the back of his head. This started a long week of tests, frequent neurological checks, and ultimately a surgery to remove that mass. 


This space is for those who continue to pray for Caleb, and want to get updates for how he is doing and the next steps as they are determined. 

Newest Update

Journal entry by Josh & Kim Decker

There are several things that have happened today that just continue to amaze me at how God is moving! First, I believe I had mentioned in a previous update that Caleb was connected in with a non-profit called Team Impact. He got paired with the baseball team at Cleary University, which is about 20 minutes from our home. We got to take Caleb and Ben out to his first practice this afternoon. They allowed both Ben and Caleb to participate in some of the practice, getting some *safe* batting practice, pitching, and just generally hanging out and getting to know some of the guys. They were all really welcoming of Caleb and our entire family.

The head coach actually goes to our church, and one of the student ministry volunteers used to watch his kids!

CRITICAL UPDATE

We got a call today from Hope4Cancer. Their leadership team has agreed to take a look at Caleb's case. We are waiting for a few updates on how to coordinate care between his current team and them. We also need to get the results from his 6-week post-op MRI.

Where we're at now...trying to find ways to cover the costs to make this happen for Caleb. I don't have the cost estimate yet, but it's expected to be $35,000-$55,000 for the 3-week treatment, 3 months of at-home treatment, and 2 follow-up visits. We'll also have to figure out travel there for all those visits. Total, I'm expecting it to be $40,000-$65,000 by the time we get everything covered.

We are exploring fundraisers that we can do here locally. I have spoke with a few of you about the idea that we'd be looking at a crowdfunding/medical funding campaign to help cover this cost. We are exploring those options right now and will let you know when we have something in place.

Please start covering this in prayer that the funds to seek this treatment will be available when it's time to get him there. This is not a "let's see if we can stave this off for a little while" treatment like what his oncology team has said is all they have left. Rather, this is a "let's heal his body from top to bottom and teach him how to maintain that health for the rest of his life" kind of treatment.

Thank you so much for being with us on this journey! I'll post more updates as we have more to share.

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