Bryan’s Story

Site created on January 4, 2019

On August 22, I received a shocking diagnosis of acute lymphoblastic leukemia (ALL) with the Philadelphia positive chromosome.  Since the moment we received word, we've been buoyed by an outpouring of support and love from family and friends. I know we will continue to rely on this strength to assist us through the long path to remission and recovery.


Sandy and I will use this site to post updates as I am having difficulty keeping up with personal messages. I do appreciate all the good vibes and am using that energy to fuel me!

For the last 3+ months, I've been treated at Dana-Farber Cancer Institute in Boston. Though relatively rare, Philadelphia positive ALL  treatment has changed dramatically in recent years.  I’ve responded favorably to my first round of treatment (oral chemo and cocktail of medicines plus periodic intrathecal chemo).  All things considered, I am tolerating the meds and gritting through the spinal chemo. The goal in this first phase is to get to a deep remission and prepare my body for a new bone marrow. Fortunately due to a generous German donor, I have a bone marrow match and will be undergoing a bone marrow transplant later this month.

I am currently in the pre-transplant testing and prep phase getting poked and prodded, but still able to muscle through and enjoy some of Hans’ winter competitions.Thanks again for your support! Onward - Bryan

(Photo 9/13/18  Beacon Hill, MA-  Start of treatment and making the most of of our time in Boston.)




Newest Update

Journal entry by Bryan Huber

A very heartfelt thank you to my long time friend and HS soccer teammate, Howard Dieter and his family for demonstrating the kind of grit and determination that it takes to overcome obstacles and accomplish the mission. With the help and support from all of you, they raised a significant amount of money to support leukemia research and further advance life-saving treatments. Thank you all!
 
Howard's post event recap and a personal thank you follows.  Onward brother,
Bryan
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As I wrap up the Triple Bypass weekend, I wanted to share a few things from along the journey…

First, this event was far from an individual effort, there were over 600 volunteers to help along the way including a significant presence from the Colorado State Police to keep us safe. I had support from Kelly, my wife, and Sydney, my older daughter who met me at Loveland Basin with some dry clothes and at the finish line to help celebrate. My younger daughter, Kelsey, is a Paramedic, and was helping others on shift but she, along with many family members and friends, provided uplifting text messages during the ride.

My second observation is what can be accomplished working within your circle of influence. Together, we raised almost $6500 for LLS in Bryan’s honor! This certainly exceeded my expectations. Contributions and encouragement came in from my family and friends along with many people that I have never met. Regardless, we banded together to make a difference. I am honored to count you all in my circle of influence for this event and greatly appreciate your support and encouragement!

Finally, this was a one-day event voluntarily challenged the limits of my physical and mental toughness. The Evergreen mountain bike team was positioned along the route providing encouragement for riders. Their sign read, “Remember, you paid for this!” Made me laugh during a particularly difficult segment. However our neighbors, friends and family members confronted with medical conditions, face daily challenges both mentally and physically. Let us be mindful of those in need and what we can do in our lives to help others within our circle of influence.

Signing off with much love and gratitude for you all! Howard

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