Jennifer’s Story

Site created on April 9, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Jennifer LePard

I'm once again getting frustrated. Getting thrown around from doctors, and don't get me wrong because they are listening, but one says it's a cardiology issue, cardiology will say it's and endocrinology issue, endocrinology will say it's a rheumatology issue, and so on. So close, but so far still.

My heart rate is still resting around 115-120. Jumps up to between 125-175 just from standing up and walking. Blood pressure and blood sugars are still crazy high. My endocrinologist is talking about putting me on insulin. 

The other day, I fell down the stairs. An hour later I woke up not understanding where I was, and realized after I fell, I passed out on the ground and was there for an hour. Just now, I went to stand up and fell in my garage and scraped myself up. I am weak. My legs don't hold me. I can hardly wash my hair in the shower because my arms get weak and start to hurt. I keep cutting my hair to make it easier, and it kills me because I grew out my hair for so long. I keep hurting myself by falling. Which causes cuts which cause infections. I'm still getting infections weekly. My brain is often very foggy. I want to be healthy. I want to be better. But tonight, I am breaking down. I cannot feel my left foot from my fall, my right arm is so scraped up that all I feel is pain. (Story of my freaking life) I can't move my right arm well. 

How many more years can I advocate for myself before they find out what's causing everything? I have several diagnoses, but there is a bigger root cause somewhere. I'm so tired of pain and being sick. Please God, either heal me or take me. 
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