Brenden’s Story

Site created on February 1, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Zack Butler

Something I find impressive and common among those in treatment is how in tune they are with their body and how it responds to treatment. It’s a very perceptive form of ownership that develops over the course of time. Case in point, prior to Brenden’s scheduled chemo yesterday, he posited that his blood counts were low and would most likely delay this round. His thoughts were confirmed by the subsequent blood test, pushing this round out a week. Additionally, he received a unit of blood to give him a “boost” in order to get those counts up for next week. Just another day in the life of a chemo patient. *PSA - Thanks to all who have generously donated blood on behalf of Brenden, or anyone else for that matter. In the spirit of this month where we emphasize the fight against pediatric cancer, please consider donating blood. I had no idea how substantial the use of/need for blood in chemo treatment is, and I suspect most do not either. 
Despite that minor setback, it’s been an eventful week for Brenden on two fronts. Firstly, Brenden was asked to speak to the 1 Million for Anna club meeting at his former school John Paul II high school. As I’ve mentioned on numerous occasions, we’ve been extremely fortunate to be aligned with the 1M4A foundation, both for the support they’ve provided and the labor of love they perform across the country for Ewing’s patients. Anna Basso, the namesake of the foundation, is a former JPII student and the school continues to honor her legacy through their club and promotion of the foundation in their community. Brenden spoke to an attentive  group of students & faculty, giving them a glimpse into the day to day life of a cancer warrior.  He did very well and provided a short precursor to his guest speaker appearance to come later this month at the 1M4A foundation dinner. 
Finally, the piece de resistance of the week occurred on Tuesday when Brenden took a test drive in his new prosthetic. He managed a couple laps across the exam room while the prosthetist observed and applied adjustments. If all goes according to plan, Brenden will walk out next week with the finished product, ready to conquer this next challenge. 
As always, thanks for reading and for the support. 

All the Love - Zack

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