Thanks Ben. We continue to pray for Boone, you, Kelsey and both of your families. It is amazing how strong he is. I know both of you will do everything you can for him and hopefully a cure will eventually be available.

You two have a long but loving road ahead of you. Boone is a lucky boy having been born into his beautiful family❤️

Thank you, Ben, for the update. It means a lot to us to hear how things are going. I know your time is precious and for you to take the time to write this means a lot. So many prayers are being said for Boone but also for you and for Kelsey. I pray daily for physical , mental and spiritual for each of you. We love you.

Thank you for the newsy update. I keep in touch with Maggie and ask Maggie for details but it is nicer to get them straight from the parents. Sounds like you guys are doing the most awesome job possible and I know it is trying and I’m grateful you have your mom’s who can show up to do laundry and watch burn so you can take a nap. Keep fighting and stay strong