Journal entry by Sarah Peterson —
Wow it's hard to believe it's almost been a year since our last journal entry! Time sure flies when you have two young boys!
Beau and Boone both have had a great year. We've been able to go on many family trips to Nebraska and Iowa to see all the Grandma's and Grandpa's. The boys sure do love the farm!
Boone has improved in regards to eating. As of this week we are officially off his tube feeds! He's getting all of his calories through our homemade smoothies and a protein/calorie supplement. He will take some bites of solid foods, but not nearly enough to count as a meal. Eventually, we'll start weaning his smoothie amounts down to hopefully cue that hunger feeling further. Even though we sometimes don't feel as if we're not making progress, we really are!! This kid used to barf at any ounce of food touching his tongue.
He loves going to his weekly OT and Speech therapy sessions. OT is still working on fine motor movements, crossing midline, and core strengthening. He has graduated from his ankle braces to insoles we put in his shoes. He's determined to keep up with his big brother and other friends at daycare.. so he has a lot of motivation!
He has been in skating lessons this fall and winter and seems to really enjoy it. We'll see if hockey is in our future... (kind of hope not haha).
He still loves Mickey, but thankfully has broadened his horizons to Mario and the Grinch.
He's talking all the time, singing songs, and repeating movies/shows.
Minus eating, he has caught up with all of his milestones. We still see his pulmonogist every 6 months and are working towards removing his daily nebulizers and azithromycin (for lung inflammation and warding off any respiratory bugs) this spring.
As always, we're so proud of this little man! I always say no news is good news! Praying for another year of health and progression for 2024.
Beau and Boone both have had a great year. We've been able to go on many family trips to Nebraska and Iowa to see all the Grandma's and Grandpa's. The boys sure do love the farm!
Boone has improved in regards to eating. As of this week we are officially off his tube feeds! He's getting all of his calories through our homemade smoothies and a protein/calorie supplement. He will take some bites of solid foods, but not nearly enough to count as a meal. Eventually, we'll start weaning his smoothie amounts down to hopefully cue that hunger feeling further. Even though we sometimes don't feel as if we're not making progress, we really are!! This kid used to barf at any ounce of food touching his tongue.
He loves going to his weekly OT and Speech therapy sessions. OT is still working on fine motor movements, crossing midline, and core strengthening. He has graduated from his ankle braces to insoles we put in his shoes. He's determined to keep up with his big brother and other friends at daycare.. so he has a lot of motivation!
He has been in skating lessons this fall and winter and seems to really enjoy it. We'll see if hockey is in our future... (kind of hope not haha).
He still loves Mickey, but thankfully has broadened his horizons to Mario and the Grinch.
He's talking all the time, singing songs, and repeating movies/shows.
Minus eating, he has caught up with all of his milestones. We still see his pulmonogist every 6 months and are working towards removing his daily nebulizers and azithromycin (for lung inflammation and warding off any respiratory bugs) this spring.
As always, we're so proud of this little man! I always say no news is good news! Praying for another year of health and progression for 2024.
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