Bob’s Story

Site created on April 16, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Bob Ironmonger

Autumn greetings to our family and friends ~

I know it’s been a long time since I’ve posted any updates regarding Bob’s battle with leukemia.  It truly, THANK GOODNESS, has been pretty much of a “no news is good news” scenario.  There’s been a few bumps in the road with a fever/virus that landed him in the hospital last spring but our summer was smooth sailing.  At least as smooth as one’s life can be when doing chemo every day. I never cared for the term “new normal” but that is exactly what has hit me square between the eyes!

Bob is on a 30 month chemotherapy  maintenance program which means a combination of oral chemo pills every day and a chemo infusion as an outpatient once per month.  His target date, hopefully, of completion will land around June 2021 barring any unforeseen hiccups.

This is where Bob has now hit a sticky wicket.  (An old croquet term that I heard a lot growing up....)
The last two months, October in particular, he has really not felt well at all with daily persistent headaches, muscle cramps and a stiff neck.  Headaches are scary for him as this was one of his first symptoms leading to his diagnosis.  There’s also the issue that Acute Lymphoblastic Leukemia likes to hide out in the brain and cerebral spinal fluid.  An MRI of his brain was just completed with no evidence of a brain tumor.  YAY!!!  Now the next step will be a lumbar puncture (most know as a spinal tap), tomorrow to collect fluid and evaluate if there’s any presence of leukemia cells.  He’s had these 
in the past with all of the results showing no evidence of leukemia in the CSF, so I am keeping the faith that this will be clear as well.  In the meantime he will take a week or two off from any chemo drugs to give his body a rest and to determine if the headaches could be as a result of 19 months of chemo!  (This dental hygienist thinks that could be a strong possibility but I probably should “stay in my lane” - HA!)

We are both sending our deepest gratitude to all of our family and friends that have shown us so much loving support and prayers.  I personally also want to send a shout out to all of my wonderful patients ~ you are truly filling my heart with hope and love as Bob and I fight through this together.

Please keep the positive karma, thoughtful prayers and happy healing dances coming!  

Enjoy these radiant fall colors while they last ~ what a show it has been!



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