This is my first time ever having to write anything like this. I am embarking on a challenge I never thought I would be on, the challenge of cancer. Esophageal cancer to be exact. For about a year, I had noticed that I started to lose some weight, which I assumed was due to the change in medications my doctor prescribed to me. I didn't think too much about it and noticed my appetite was slowly decreasing and I was not able to eat hardly anything at all as food felt like it was getting stuck. My wife, Nancy, kept bugging me to go to the doctor and get it checked out but I was feeling good and liked my weight loss.
We went out as a family to a Chicago Wolves game to celebrate my birthday in January and decided to eat at Longhorn Steakhouse before the game. I knew something was seriously wrong when I managed to only eat 2 bites of steak and I could not eat anymore. That was the last straw for me and after researching online of things it could be, it kept coming up with the cancer diagnosis. I called my doctor within a couple of days to get it checked out.
Through tests they discovered I had H Pylori (a bacteria), put me on antibiotics and sent me in for a scope. The scope revealed a huge mass in my esophagus about 4" in length and told me I had cancer. We were not prepared for that news at all. It has shaken me and my family to the core.
I had to go through more tests to confirm the diagnosis and of the two main types of esophageal cancer out there, I have a combination of both, the official name is adeasquamous. To make matters even worse, I found that I carry the HER2 gene, which is a genetic gene for breast cancer. This tends to be a more aggressive cancer.
I have never been sick in my life or have had to fight for anything. I saw my wife through many of her surgeries, a son through a kidney transplant and here I am getting ready to gear up for the fight of my life. I am scared, I am nervous and I know what the statistics say about this type of cancer.
I am choosing to give it everything I've got to fight this beast. Will I be successful? Only God knows that. I can only hope he gives me more years with my family and to enjoy things like I used to. Your prayers and support mean the world to me and I am truly grateful for all the special people in my life.
Hi All!! Nancy here. I have to tell you something absolutely amazing. On Sunday, a group of friends from the CERT (Community Emergency Response Team) came out and handled our yard work for us along with some other tasks. Bob was so surprised, humbled and we were very grateful for their help. This is just in time for a little snow this week and our yard has never looked this good before!! So, thanks guys for all the assistance. The dogs are a bit confused too as to what is happening.
Anyway, within the past couple of days we kind of had a mini breakthrough, Bob has been able to eat a little bit more than what he has been. We don't jump over the moon, but we will take what we can get at this point. Not sure if it is the radiation or chemo that is working, but there has been a slight improvement in the eating department.
Flip side of the mini breakthough is the news that even though bob has been with his company around 20 years, they will not subsidize our health benefits on long term disability. So it will cost us out of pocket over $2000 per month for family coverage. Plan B is in the works and it is not an easy choice but one we have to make.
Let's keep the hope alive that this surgery will eventually happen for him. I feel like we have been talking about that forever.
That is the latest and greatest on him and I personally want to thank all of your for your donations to our Go Fund Me campaign along with those who have helped us with our tasks. You all mean the world to us.