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Bobby’s Story
Site created on January 7, 2019
*** Friends, as we begin this journey, we want for you to understand that when you make a tribute on this website, it goes to the Caring Bridge website, not to Bobby. We just want our friends to know the difference because it is a little confusing. We thank you for your thoughts and prayers.
Welcome to our site! We created this page to keep everyone aware of Bobby's journey into and through the surgeries for his Bilateral PFFD. PFFD is a rare, non-hereditary birth defect that affects the pelvis, particularly the hip bone, and the proximal femur. The disorder may affect both sides, with the hip being deformed and the leg shortened. It is commonly linked with the absence or shortening of a leg bone and the absence of a kneecap.
January 17, 2017 was a miraculous day when the cutest little bundle of joy arrived, our little Bobby. It was obvious that he was not like the others, mainly because of the numbers of smiles he gave and the joy he spread, but also because of the rare disorder he was born with. After much research, Elizabeth found Dr. Paley, a doctor who exclusively operates on children with PFFD. Unfortunately, the Paley Institute is in West Palm Beach, Florida. The Grosses have made three trips to the Paley Institute, and with the help of the Scottish Rite Hospital in Dallas, Texas, a very informed decision was made that it is time for Bobby to have surgery. Bobby's first surgery is scheduled for March 7, the second surgery is scheduled for March 28, and the third procedure to remove rods will be April 22. This means that with surgery, recovery, and physical therapy, Bobby will need to be in Florida for almost three months. We are hoping that this site will be the easiest way to keep people in the loop on what is going on. Thank you for your prayers and positive thoughts.
Bobby is walking without his brace and his femur bone has consolidated! Dr. Paley said it is time to remove the Precise Plate. We can book surgery in 4-6 weeks! I am so proud of our brave boy.
