It takes a very strong person to grow up in a hospital and face or think about whats wrong with you and why you have to be in a hospital quite often, that was me. I was diagnosed with a rare and sometimes severe blood disorder. Congenital dyseyrthropoetin anemia type 4.  Its so rare that its prevalence is 1 in a million! This dosorder has always affected my life and i thought this would be a good website to share my journey with the world bc this disorder i have doesn't end with me so i feel by writing down my life journeys that my children (the 3 out of the four that have it) will know what to do if my health does not improve. They can see what happened with me and know momma went wrong and that i too through it and kept going bc we can't give up and that i always remained strong enough in front of rhem