Bjorn’s Story

Site created on June 10, 2018

My narrative of Bjorn's Story was too long for this section. You can find it in the journal entry titled "the full story", and read the quick summary here.

It all started with some puking. Then more puking and exhaustion. We thought our boy had a stomach bug.  We were in and out of the ER for a few days, Bjorn was dehydrated and got IV fluids. Finally we were admitted overnight for more fluids and observation. That was the night that everything changed, the night Bjorn became unresponsive and had a seizure. In the wee hours of the morning on June 9th, we learned that our beloved son had a brain tumor the size of a small lemon. Bjorn and I were flown to Sanford Medical Center Fargo, where he was rushed into emergency surgery to get an EVD to relieve the pressure from the hydrocephalus. Then came the MRIs, and the removal surgery was scheduled. Our dude championed through the 8 hour procedure, and began a slow process of getting better. We began looking towards our return home, with the acknowledgement that there would be continued physical and occupational therapy.  Then the hydrocephalus returned, and the drain had to be replaced. Back to surgery, back to the PICU. The next day our world changed forever again, the pathology results had returned from the tumor... not only was it cancer, it was an extremely rare and very aggressive beast called ATRT, or an atypical teratoid rhabdoid tumor. Less that 10 kids a year are diagnosed with this in the US, and our Bjorn has joined the ranks of these mighty young fighters. The future holds many battles for our family; there will be chemotherapy, radiation, bone marrow transplants, and he may possibly join a clinical trial. There is no standard treatment for a cancer this rare. But, Mr. Bjorn already beat the odds getting this, so we know he's going to beat the odds and make a full recovery. Presently he is fighting a subdural fungal infection, from which he must fully recover before getting the next surgery to place his permanent shunt and chemo port. Every part of this journey has been 3 steps forward, 2 steps back. But forward he persists to recovery! Once I have access to a proper computer on which to type, I wish to share the full heart wrenching story with you all; but for now this will suffice and I will be posting updates as we get them. We ask that you keep our sweet baby bear in your meditations and prayers, and send him all the positive healing energy you can. 


Follow Bjorn on FB: https://www.facebook.com/asonalovealightabjorn/

Newest Update

Journal entry by Abigail Courtney

Dear Friends.

With a heavy heart I report to you all - Master Bjorn Francis Peterson has made his journey to the great hereafter. It was a peaceful passing, cuddled between his mommy and daddy. 

I don't have a lot to say at this time. It's taken me nearly a week just to get this much out. We are all coping, grieving, and recovering. I explained to Zarek that Bjorn went back into the realm from which he came, and he is free of pain and suffering. Sometimes we will be sad because we miss having him here, but remember that he isn't sad; he is free. He will still visit us, but in totally new and different ways than we are used to. It's okay to feel sad or mad when someone dies, but it's important to honor their memory by doing the next right thing.

So that's what we are doing. The next right thing, just like one of Bjorn's favorite movies, Frozen 2. (Watch it!) The night Bjorn left we watched it together, and as I held him I said that he can come visit me and watch this movie anytime. 

There's a tree in our yard dedicated to Bjorny, we hang ornaments and chimes and toys from the branches. I included a photo of it; with one of the frequent picture glare anomalies we see. I think it's a glimmer of Bjorn. I have been spotting triangles a lot too, and other little things that just remind me that our love lives on. Love cannot die.

Here's the thing about death; specifically a death like this where someone has fought and suffered so very much before succumbing to disease. They, their spirit, is happy. No more pokes, no more pain. They are free. I don't intend to proselytize here, but I think its fair to generalize that these souls, once departed, are free from agony and sadness. Death has parted them from their disease and pain. It's the people still alive that are hurting now. We carry the pain of losing them in the physical realm. And as much as I wish none of this were happening and I still had the privilege of hugging both of my sons, I take some solace knowing that Bjorn will never hurt again. He is at peace. Our family is also laboring into that peace. Bjorn was the best four years of my life, and I am forever changed by his legacy. I am so blessed to be the mama of two perfect children... One looks up to me, the other looks down upon me. I never wanted it to be like this, but this is the fate we shall rise to meet. 

Thank you all for your love and support. Amiee still has the GoFundMe up, as we are still financially recovering from basically 2 years of treatment, and currently neither of us are working nor do we qualify for unemployment - so those of you who have donated to us please know how much it means to our family! That said, I know we're all financially hurting at this time, so please don't feel that money is the only way you can support us or memorialize Bjorn. As of now I'm asking people to plant a tree (or whatever you can) in his honor. So many people shared their candles for #shinebrightbjorn, it was astounding to know how many folx out there care. We are discussing what we want to do now, I want to start a completely accessible movement in the name of Bjorn. So. Stay tuned for updates on that. 

Meanwhile, keep spreading positivity, radiating love, and do the next right thing. 


Sleep now, sweet prince.

Bjorn Francis Peterson
03/30/16 - 04/30/20

We love you forever.
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