Bill’s Story

Site created on July 5, 2020

On April 3, 2020, I woke up with a unusual cough, pressure in my chest, slight fever, fatigued, pressure behind the eyes, body aches, headache and a racing heart rate. At the time testing was limited by strict CDC guidelines. I was told to self-quarantine for 14 days for “presumptive COVID-19.”

It was two weeks before the team at Loyola became concerned about one symptom-my heart rate.  I was experiencing sinus tachycardia often reaching close to 150bpm. I was admitted on April 22, to Palos Hospital for an echocardiogram. Ironically, I needed to test negative for COVID-19 before the test.  On April 24,  I had the echo which revealed normal heart function. 

Sadly, the tachycardia didn’t resolve.  My doctor, still concerned, ordered a stress echocardiogram at Loyola on May 22.  The test reveled no blockages in my heart, but a reduced LV ejection fraction was diagnosed.  I was suffering heart failure.

I was told there are three types of cardiac doctors: the electrician, the plumber and the carpenter. You really don’t ever want to see the carpenter.  So, I started with electrician on June 9.  He wanted to do some imaging, but first felt we needed a better check for blockage.  The plumber performed an angiogram on June 18 .  He informed me that he found some unusual blockages.  The dreaded call came on June 23, the carpenter broke the news that I needed coronary artery bypass surgery.  Even worse it would be an open heart procedure.  

Loyola has scheduled surgery for July 20th.  I will be in the hospital for my 52nd birthday week (I hope there’s cake) and recovery will be eight weeks.  The wait is stressful, but the new normal is that “elective” surgeries are in catch up mode during the COVID-19 reality.  The upside is that my condition is stable enough to wait. 

I am blessed my boys, sisters and mom have my back and stand ready to help.  Family is my rock.  And I know my dad and Jane are with me as always.

In our lives, if there is one certainty, it is that our faith will be tested. But this too will pass. “The cross means there is no shipwreck without hope; there is no dark without dawn; nor storm without haven.”-Pope John Paul II. I believe.

The kindness you have delivered to me via GoFundMe, Caring Bridge, Facebook, email, text and phone is simply beyond belief. I see you, I hear you and I feel you. Thank you.

Finally, I choose joy! A friend from college reminds me often to search for the things in life that bring joy. Happiness and sadness come and go...but we can always look and find joy.  All of you that have remembered me bring me joy and that makes all the difference.

Newest Update

Journal entry by Bill Sullivan

This is a life of extremes

Both sides are slippery and enticing

These are my places off the rails

And this, my loose recollection of a falling

I barely remember who I failed

I was just trying to keep it together

 

Hello. It’s me with the help of Alanis, again.  We’ve been on a first name basis for awhile.

 

Alanis Morissette and I share a survivor story.  Perhaps that’s what drew me in to her lyrics.  Her latest album, Such Pretty Forks in the Road leads off with the tune Smiling.  She explains in the liner note:

 

 “Countless therapists have given me feedback that, ‘Alanis, you’re saying something really, really challenging and hard to hear, and yet you’re smiling. Tell me about that.’ It’s the idea of presenting one way, and then internally falling apart. And that’s not an uncommon thing with certain types of people who want to help.”

 

Yup, my girl nailed it again.

 

This is my first wave of my white flag

This is the sound of me hitting bottom

This, my surrender, if that's what you call it

In the anatomy of my crash

And I keep on smiling

Keep on moving

Can't stand still

 

Life was pretty challenging before my health issues this year.  I often told myself to “keep on smiling…keep on moving.”   Push your dark stuff down. Take care off others in their time of need.  Be the helper. Hide from the trauma.   Yes, Alanis, “that’s not an uncommon thing with certain types of people who want to help.”

 

Me, the notorious bottom dweller

Me, the ceiling-less brave explorer

Lured to the ends of overwhelm

 

So this year has left me largely without my coping mechanism.  And that’s hard.  I started this journey retorting that “I’m the one who is supposed to be helping others!” You see it turns out that when you are forced to live without your security blanket you need to face contradictions raging inside.

 

The fight is still real.  I finished cardiac rehab and moved onto physical therapy.  They cheered yesterday when I began to lift the six pound weights. That’s along way from the 50lbs I would need to apply for so many jobs. I still get lightheaded when I stand, a hurdle the doctors tell me I may need to learn how to live with. There have been changes to my eyesight, but some magic eye drops have helped a bit. Lots of doctors appointments, prescriptions and more. I look forward to finding employment, but there is no real timeline.  I remain optimistic and continue to #ChooseJoy. 

 

Such pretty forks in the road

On this continuum I've been bouncing

Life flashing promise before my eyes

 

Love and Happy New Year,

 

Bill

#IOGD

#ChooseJoy

 

PS: In case there was any doubt, your prayers and support are getting me  through this terrific challenge. I cannot say thank you enough. I feel truly hopeful and cared for by your generosity


PPS: Watch Alanis perform Smiling-https://youtu.be/MoW2LEEs4WA


 

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