Dave’s Story

Site created on October 29, 2007

Welcome to Dave's CaringBridge site. It has been created to keep friends and family updated about Dave as he progresses through kidney disease trials and triumphs!

Be sure to read the latest updates in the journal, view the photo gallery, and drop us a line in the guestbook.  Be sure and bookmark this webiste for future visits!

Dave’s story began on Saturday April 21, 2007 when he was diagnosed with IgA Nephropathy (End Stage Renal Failure) at the age of 37. Dave is full of life; he has been married for 23 years and has a beautiful 21-year old daughter. 

In 2008 Dave was on the organ transplant list, which was 8 years long, I was surprisingly Dave’s donor match.  In 2008 we did the transplant however, within a month it had failed.  Our transplant team tried for a month to save the donated kidney, but to no avail, they could not. Unbeknownst to us Dave generates an extra AT1 Receptor which attacked the new kidney and destroyed it.  We did not know of this Receptor because the United States did not test for it. But in 2009 after our case was sent to Germany for further testing, it was discovered WHY he rejected my kidney – basically his body generates too many antigens.  Now that we know what the issue is, next time the transplant team will be more prepared to address this Receptor issue with more immunotherapy. 

What was the culprit of Dave’s kidney disease? It was a genetic disease that was lying dormant for 37 years; it became active somehow (we don’t really know what set it off) and he developed hypertension which then sent our lives spiraling into this new lifestyle. As we struggle through each day with its ups and downs we keep a pretty positive attitude. On a daily basis Dave deals with mood swings, the emotional stress that comes with the unknown, fatigue, as well as a lot of hope! The metabolic imbalances that come with kidney failure produce deadly toxins in his body that he can’t get rid of; dialysis helps his body remove the toxins. Dave is a strong, caring, loving person that is unselfish in every way; and it is our goal that he is able to live a normal life as possible!

At this time Dave is not currently listed on the transplant waiting list.  He has decided to continue with dialysis treatments for now.  Medical Science is continuously advancing and we hope that one day there will be a cure for kidney disease.







Newest Update

Journal entry by Andrea Riegler

Today marks one year since Dave’s passing.  I cannot believe that a year has already come and gone.  So much has changed in the past 12 months.  

 

This will be my final journal entry for his Caringbridge page.  I am so thankful for this platform.  It has given me the ability to tell our story, educate, recount, and process 12 years of End Stage Kidney Disease.  Over the past year, Ashlee has graduated college, she’s gotten her first real job, I sold our family car, have dealt with living in a Covid world, working from home, lived through all the “firsts,” I paid off our credit card debt, and I have even dated!  Personally, I have grown a lot in my grief and learning to move forward with it, and by all account’s life is really good for me.  

 

However, time does not heal the pain, it only teaches me how to live and grow from it.  I am not the same person or the same soul that I once was, there are some parts of me that no longer exist. Grief has made me a stronger and kinder person. With grief comes a life altering perspective that never would have been obtained any other way. I feel everything deeper; I am able to love harder; I know how precious and finite time is and so I try not to waste it.

 

Of all the widow’s countless death-duties there is really just one that matters: on this first anniversary of Dave’s death I have to think…I kept myself alive! It was hard, I didn’t eat, I didn’t sleep, I was living in a widow fog, and was so forgetful, my cognitive skills were out of balance and I didn’t think I would ever gain them back. Being a good mother while my heart is breaking is one of the hardest roles I’ve ever had to play as a parent, and it’s still hard with a mourning child. I have spent the better part of 2020 working on myself, focusing on me, becoming my best self, enjoying life’s adventures and doing and seeing things I have never done before. Dave and I had many conversations about what my happiness would look like after he was gone, and he wanted me to live a full and exciting life knowing I would have to carry this grief with me for the rest of my life.

 

Grief never ends because love never ends. In time, living with grief just becomes normal. And yes, it is unfair and brutally painful but, in an effort to move forward (not move on, but forward) with my life I accept the way that grief has changed me, and I kind of like it. I live life in moments and appreciate the breaths I’m given because I know how quickly everything can change. My heart is larger, and my soul is softer and kinder because I know pain.  I would rather live with the everlasting sorrow of outliving Dave than live a life not having experienced our 30 years of love at all. For that I am thankful. 

 

Thank you to everyone that kept up with our story, trials, and triumphs over the years.  Your support, love, encouragement, and prayers has meant the world to all of us. Thank you for crying with me, comforting me, bringing me food, and checking in on me; I have no words to express my gratitude. 

 

On this day, Friday September 18th at 10:59am I ask that you all recognize a moment of silence in honor of Dave; please say a prayer for Ashlee and I as we continue to navigate forward in our new normal. Thank you, we appreciate you, and love you all!

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