Unfortunately towards the end of break Addie got a runny nose. Any illness is a major concern for us so we took extra precautions to protect Bennett. We washed our hands and sanitized constantly. We kept Bennett in his room. I changed clothes when I was in Bennett’s room versus with the girls. Yet, Bennett started showing signs of a cold on Friday, January 4th. Early on Saturday morning I ended up calling the on-call physician at Iowa City. Based on what I described they wanted me to bring him in to the ER and we felt comfortable driving him so we made the hour and a half trip. I was a wreck. I did not want to be in the hospital again. I also wanted him to be safe. He wasn’t looking bad but just enough that he needed to be seen. They checked him out and believed he had a virus but the chest X-ray showed his lungs were good. They gave us the choice of being admitted for observation overnight or go home and return if needed. We decided to go home and over the next few days he definitely wasn’t at his best but he didn’t seem worse. He did develop a little cough though which was sad to listen to. On Monday we had a lung X-ray done in Geneseo to check it hadn’t developed into pneumonia and that came back clear too.
On Tuesday he had six appointments in Iowa City with various specialists. The first was the pediatric surgeon. Bennett has developed a hernia in his groin and has an umbilical hernia. Both will require surgery in the near future. We discussed that it makes sense to have a g tube for feeding placed at the same time so he doesn’t have to be put under multiple times. We also met with his cardiologist and had a heart echo. Overall his heart still looks pretty good. There are still a few things they are watching but the cardiologist is optimistic they will resolve on their own and he doesn’t need to see him until he’s six months old. Next he had another hearing test which he still didn’t pass so he has another more extensive one in about a month. We met with his dietician and discussed our concerns of reflux but also that his stuffiness may be related to the cold. Yet he has always kind of had some gunk in his nose and throat after feedings so I think this needs further looking into. We then met with his speech pathologist and discussed feedings and this concern of reflux and he’d like to see us again soon and watch him with a whole bottle to see the whole process. He’s done all of his swallow studies and believes he is capable of eating orally but is concerned that he may start struggling when he gets tired so we’d like him to see the full process.
Throughout the week Bennett seemed to get better but you could tell the cold was lingering. We had more appointments on Friday in Iowa City so I was glad they would be checking him out. I had my six week obgyn check up and then it was time to meet with Dr. Dagle, Bennett’s neonatalogist. I’ve probably discussed him on here before but I really am a huge fan of him and I’m so glad he’s following Bennett’s case. He reaffirmed why we love him when he presented us with an adorable, soft quilt his wife had made for Bennett and he had signed from him. What an amazing gesture!
While at this appointment Bennett was hooked up to our pulse oximeter and theirs and he had several episodes where he dropped his heart rate and oxygen level at once. We had noticed that some at home but his home nurse and cardiologist both thought it was misreading because he looked fine during it and didn’t change colors. We’ve come to find out that Bennett is really good at hiding when he’s struggling. His body compensates very well for something not functioning right until he gets too tired. We believe that’s what happened that day. Even though he’d been looking better, he was fighting the virus until his little body just couldn’t do it anymore. They said this is common in babies. They compensate until they can’t anymore and then fall quickly. Fortunately we were at the right place when it happened and we were admitted to the same floor we’d been on a few weeks ago.