We we got here and they had to run more tests. Andy arrived a little after and we waited as they went through the process of admitting him. Due to his age they had to check for meningitis and had to do a spinal which we left the room for and paced the halls. Finally we were admitted and sent to the 10th floor of the Children’s Hospital. They began him on antibiotics as his chest x-rays showed pneumonia.
Over the the next couple days, we waited to see if we could figure out what caused it but no bacteria or virus was ever confirmed so it was called community acquired pneumonia. We were suspicious it was caused by aspiration so they had a swallow test completed that he passed. We still thought possibly it was from reflux too but that would be hard to confirm.
Bennett was working pretty hard at breathing and on Saturday night they moved us to another room and discussed putting him on high flow oxygen. I actually pushed to not jump to that because he hadn’t really changed from what he was previously doing and when he was in the NICU, the high flow kind of had the opposite effect and made it hard for him to get even breaths. They agreed to wait but it led to a sleepless night and a lot of doctors visits to the room which stressed Bennett and us.
The next couple days involved a couple different iv antibiotics, some x-rays, and a plan for how to get us home. It was a really rough time as on the weekends not a lot gets done and with Christmas Eve on Monday, I really wanted to be home as a family. We did go home for Andy’s family’s Christmas on Sunday which was nice. I was a kind of a mess though. I wanted to be home for Christmas, especially with his condition statistically this could be our only Christmas with him. The doctors started switching us to antibiotics he could continue at home and made sure he still was improving but then gave the ok for us to go. It was scary leaving when he wasn’t 100% but we were ready to be home. We got home the afternoon of Christmas Eve. It was so nice spending Christmas Eve and Christmas as a family and I’m so glad we were able to.
Bennett did continue to get better and we started to settle into a good routine with him. It was fun but exhausting having the girls home for winter break. Adding a third baby to the mix would have made our life busy anyways but when that baby has several medical needs it is a whole different level but we did our best to spend time with each of them.