Journal entry by Nicole L —
When I arrived at the hospital this morning, Ben had already had a round of chemo, coffee and was ready to go for a walk. We walked the halls and got back in time for his next round of chemo. We've both noticed he's starting to become more tired throughout the day so he slept through that treatment.
The doctors are happy with his counts so everything is going as expected so far. There are different teams that come by throughout the day to check in and give small portions of education. Ben greets everyone that stops by with his contagious smile and likes to ask them questions and get to know each of them.
Our oncologist came by today and said one of the bone marrow test came back and they found a disorder in his bone marrow. Myelodysplastic syndrome-which would explain why his counts kept dropping when he was on treatment and couldn't stay on one for very long. The good news is the way you treat it is a bone marrow transplant, so the upcoming transplant should take care of that too. I guess if we ever question if a transplant was the right decision, now we know we would have ended up here eventually regardless.
We are supposed to get a bunch of snow up here tonight and tomorrow so I'm hoping I can make it to the hospital for a visit. I made some butternut squash soup in the instant pot for tomorrow so I'm as ready as I can be!
The doctors are happy with his counts so everything is going as expected so far. There are different teams that come by throughout the day to check in and give small portions of education. Ben greets everyone that stops by with his contagious smile and likes to ask them questions and get to know each of them.
Our oncologist came by today and said one of the bone marrow test came back and they found a disorder in his bone marrow. Myelodysplastic syndrome-which would explain why his counts kept dropping when he was on treatment and couldn't stay on one for very long. The good news is the way you treat it is a bone marrow transplant, so the upcoming transplant should take care of that too. I guess if we ever question if a transplant was the right decision, now we know we would have ended up here eventually regardless.
We are supposed to get a bunch of snow up here tonight and tomorrow so I'm hoping I can make it to the hospital for a visit. I made some butternut squash soup in the instant pot for tomorrow so I'm as ready as I can be!
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