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Apr 14-20

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Since February when I posted last, Ben has been doing so great! He has had three other AFP checks and each time the number has been good! He also had another sedated hearing test, MRI, and CT scan to check everything. His hearing test came back exactly the same as the last one- some moderate high-frequency hearing loss (they told us that his hearing can be affected for up to a year from being off of treatment, so we were glad that it hasn't gotten any worse). His scans also came back looking normal! 

He will have another clinic visit in June, then scans one more time in July. After his scans in July, he should be able to just to go the lab for monthly AFP draws- which will be much easier than going to the clinic every time for a visit! We will still go to the clinic, but just every few months instead of every month. 

Ben also started Kids Day Out a month ago! It's two days a week for a few hours and he is loving it! By the third day, he was walking straight into his classroom to go play and forgetting to tell me "goodbye!" I feel like he has grown so much these past couple months! He is such a wild, silly, stubborn, smart boy!

We are so thankful for how well Ben is doing, but there is still this little cloud over our heads of what could happen, of the cancer coming back. I would just encourage you all to continue to pray for families who have been affected by childhood cancer, to find ways to donate, and to get involved. There are a lot of really neat organizations out there. If you would like some resources on hepatoblastoma and how you can help and support those with it, here are some really great websites:

www.owlsforavery.org

www.addiesresearch.org

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