Kayla’s Story

Site created on March 19, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Kayla McKamey

Well, it’s almost been 2 weeks since Ben has come home! We are all doing well (including the dogs)! I started my new job with MNGI on Monday and it went well! First week was corporate orientation so, next week I will start in the endoscopy center. So far, I am really enjoying to culture of this company! Everyone is so happy to work for this company and they are so happy to have new people join! It was hard to leave Ben and Jennie at home after only having a week at home with him but, it makes it a little easier knowing that Jennie is with him.

As of yesterday Ben weighs 6 lbs 13 oz! He has gained 13 oz in 12 days! We are pretty lucky. He is a really good baby! Doesn’t cry much. Sleeps well. He is still eating every three hours during the day and at night. That is the hardest part especially for Jennie because she also has to pump everything 3-4 hours. We are still working on breast feeding. Eventually he will be able to exclusively breast feed, until then, Jennie will pump and he will take it through a bottle. He is still on oxygen (1/8 liter). One of the neonatologist who took care of Ben in the NICU is managing his oxygen and they are in no hurry to aggressively wean him off. Jennie and I are but, we have found out through this journey, it’s never on our time frame and we are settling in for that to be the case for the next 25 years! Lol! Ben is having more awake and alert periods and that is fun to see and interact with him.
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