I keep (gently when needed) pushing forward.  

My colorectal appointment on Monday left me with very limited options:

1) Botox and exparel again pending insurance—will get this on the books I think

2) An “advancement flap”—hard pass, they use healthy tissue to help facilitate healing over the fissure

3) “sit tight”—its been six months and “sitting tight” is the reason I am in this mess 🤣

It was odd though, because the resident with the surgeon said that HER MOM, has Interstitial cystitis (without Hunner’s ulcers).  

I have been given an appointment for an instill tomorrow afternoon.  The PA who will do the procedure is in my urologist’s office and I know her pretty well.  She is the “kidney stone expert” there, too.

The financial assistance office at the U is trying to help me arrange a care plan that I can get approved (the bladder cocktail they use, DMSO, is $2100 for the medicine alone).  Secondary insurance is going to be expensive.  

My physical therapist’s office got a few payments pulled back from my previous primary insurance, which I now owe.  At the U, the physical therapist visits there are so difficult to get into.  I have two appointments scheduled in December.  That is good, but a huge difference from 2x a week.  

But slow and steady wins the race, right?

Thank you to everyone who has been following the debacle that is my health and healthcare.  

I have had some mental blocks with motivation.  With my depression, pain, illness, anxiety, OCD, and PTSD, I know I should probably be on some medication but I’m trying my best to eliminate as many as I can.  I meet with my psychiatrist next week.  

Also, I will try to follow-up with my PCP, because, of course.

Good vibes and God Bless,

Becky