Journal entry by Amy campbell —
It's been a little bit since we updated everyone.....
Beckett has been Off-Treatment for 3 months now and he is thriving! He is enjoying school, time with friends and family, and no medicine! This week he stopped taking his extra 3-months of Bactrim, so he is officially off all medications.
We were back at clinic this past Wednesday and his counts looked great. His liver enzymes have continued to be high since he ended treatment but they will check that again next month and told us not to worry since his bilirubin numbers are normal. If they continue to be high, he will need to have some imagining done. Beckett's hemoglobin, ANC, and platelets are slowly creeping up. They might take a while but I can remember when they were all at zero (or dangerously low), so the numbers are looking fabulous for now. Beckett's energy levels are great and he hasn't had any leg pain. He continues to do well with his PT and OT consults so no need for regular sessions He has a fine rash all over his face that bothers him (you would really have to look for it to be able to see it) but that is just his body reacting to coming off of chemotherapy and may last months.
Beckett grew one inch this last month which makes him very happy! He is eagerly waiting for his after-treatment growth spurt that the doctors have told us about. Unfortunately, I think Beckett thinks he will grow a foot overnight....we told him to be happy with 1 inch :)
We have a lot to be thankful for! We are so proud of Beckett and happy for his current state of normalcy :)...which is all that he wants!
Wishing you all the best!
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