Barbara’s Story

Site created on September 20, 2018

I have always considered my self extremely blessed and one of the luckiest people in the world! Bob and I have thoroughly enjoyed a fabulous marriage and careers promoting longevity and restoring function and caring for patients. Unfortunately, on Sunday morning September 9th, this future changed when we became concerned with a speech pattern best described as gibberish.  So much so, that I acquiesced and allowed Bob to take me to the emergency room where 2.9 cm mass was found in the temporal lobe of my brain. Unfortunately, it looks like I had run into the Teddy Kennedy, Johnny Cochran, Beau Biden and John McCain type of luck.

 

Even for those of you who are not medical, you can appreciate that this finding is generally not good.  We spent the next week elbowing our way into the offices of four of the leading neurosurgeons in the State.  From each one of them we were blessed by an incredible giving of their time, knowledge and compassion.  While each provided variations in the details, each unequivocally stated that surgery to remove as much tumor as could safely be accomplished was the first step.  We are scheduled for this procedure at MD Anderson Tuesday 9/25.

 

While everyone is thinking glioblastoma, the precise diagnosis is not certain.  This is good because that tumor is probably the cancer that responds most poorly to conventional treatment.  While the chances are not great, it would be a blessing to find virtually anything else because all show better responses to treatment.  We should know with certainty on the 25th.

 

If the diagnosis of glioblastoma is confirmed, there is some benefit to chemo and radiation therapy, which will begin about three weeks following surgery.  On a positive note, there are literally hundreds of experimental trials on this tumor exploring the potential of gene therapy, immunotherapy and a number of other novel treatments.  We will almost certainly be exploring these options, striving to improve medicine in a different way than we have over our careers.

 

When learning of this news, the universal reaction of family, friends, colleagues and patients has been one of disbelief and sadness.  This is not how we feel.  The outpouring of support from every direction suggests to me that I have touched many lives in a positive way, which brings me great joy.  I would hope that you would join me in facing this news with no tears, no sadness and as Christ taught us to pray, “ thy will be done.”  I am certain that my optimistic perspective is derived from my belief in the in the power of prayer. One of my favorite Bible verses has always been Isaiah 53:4, “ He took our infirmities and bore our diseases.”   In your prayers, please join me in guiding the hands of my surgeon during the tumor resection and for the preservation of my speech, which is at risk.

 

Your expressions of love and support mean more than you will ever know.  My family and I will keep you updated through this site.  Your prayers and positive outlook are greatly appreciated.

 

With love to all of you!

 

Barbara 

Newest Update

Journal entry by Robert Probe

This week marks the one-year anniversary of Barbara's passing.  Over this year, I will confess to not completely living up to her request for "no tears,"  but do feel as though the feelings of sadness and loss are far over-shadowed by my gratitude for the blessing of being able to create so many wonderful memories together.   

I am certainly not alone in having a strong desire to cherish these memories and honor the legacy that Barbara left.  On what would have been her 62nd birthday, a dozen friends, family, colleagues and patients told the Barbara story from their perspective at her 10/15/22 Celebration of Life.     At ninety minutes, this may be on the long side but citing everything extraordinary that Barbara accomplished could have easily taken hours.

A number of other notable honoring events were enjoyed last year.  One of Barbara's favorite charity events was Temple's New Year's Eve Celebration in support of the local Youth Club.  This year a number of those providing support to Barbara through her illness gathered at a large table in honor of her.  The evening ended as a spectacular fireworks display sponsored by Bill and Michelle DiGaetano brought in the New Year in Barbara's honor.  This was followed in April by the reading of a State Resolution recognizing all that Barbara had done for State and Community.   Introduced and read by Representative Hugh Shine, the family and friends in attendance looked on pridefully.

Finally, last weekend,  twenty family and friends gathered in Crested Butte.  On the anniversary of her passing, all gathered in one of her favorite mountain meadows and shared stories of what Barbara's remarkable life meant to them.   This group also spent the remainder of "Barbara's Memorial Weekend" helping to complete the planned spreading of her ashes.  With this group's help, Barbara is now enjoys a vantage point from five of the most beautiful and prominent mountain peaks in the Gunnison Valley.

I'm certain that Barbara sees and appreciates these events of the last year but as those that knew her can attest, she was always one planning for long-term success.  With this this in mind, the family working in conjunction with the Temple Symphony Orchestra and the Central Texsas Orchestral Society have  coordinated the philanthropic desires of those that loved Barbara and created the "Barbara Weiss Probe Endowment for the Arts."  Current plans for this endowment are to support the Annual Van Cliburn Finalist Recital in perpetuity, the third week in October-her birthday week.

As we once again, celebrate this remarkable life, please join me in a special prayer of remembrance this week.

With love.

Bob

 

P.S.  Clicking on the attached pictures displays the full image.

 

 

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