Mike’s Story

Site created on April 11, 2020

I don’t think this site will be similar to most other cancer update sites. I’ll do my best to provide normal updates, yes, but I’ll also use this to share extreme detail of my journey...details you may or may not find interesting or appropriate. I’ll share my thoughts, my fears, what's pissing me off, and what's making me laugh. 

Why am I doing this? I have several reasons, and I feel compelled to share them because I’m feeling self conscious about posting about my cancer:
1.) I thankfully have a lot of people to update and this way of updating is highly efficient. I don’t have time to talk to everyone individually and say the same thing over and over. Beside the monotony of that, I’d say about 25% of you I don’t want to talk to even when I’m healthy, which is especially problematic. BTW if you’re wondering if you’re in the 25%, you know what they say: If you have to ask...I’m just kidding. I love everyone. I’m sincerely grateful for anyone asking about me.  
2.) I’ve recently learned that some people have a morbid curiosity of other people’s cancer journey. My daugher Jane, for instance, knows more about cancer than my oncologist. What I’m embarking on is going to be awful, difficult, and life changing. The biggest challenge of my life. Who am I to deny this to anyone?
3.) Although I'm recently enjoying a much celebrated return to instagram, I don't see much cancer related content in there in general, so I think I'll continue to keep things light in there and funnel the cancer stuff to here.
4.) I plan on surviving this, and when I do, I want this to look back on so I don’t forget. If I don’t survive, that last sentence will be a little embarrassing. 
5.) I think I’ll find posting in here therapeutic. That’s probably the most valid reason. 

Either way, I’m here. I have the account. I have cancer. If the cancerous shoe fits....

My details: 
On Thursday March 19 I went to my primary doc to get a bump on my neck checked out. After numerous appointments, ultrasounds, MRI's and an ultrasound guided biopsy, it was confirmed to be cancer on March 31. On April 6th PET scan results showed the cancer hadn’t spread and the source of the neck tumor was a smaller spot on the base of my tongue. And on April 9 my treatment plan was confirmed to start chemo and radiation on April 20. 

I have squamous cell carcinoma stage 4. They say the staging of cancer in the neck is different, and my prognosis is good, but yes you read that right: stage 4. Holy shit. At first they told me stage 1. But now they say stage 4. Either way my docs seem optimistic, genuinely so, and repeatedly tell me my prognosis is good and this is curable. I’m going with that. 

I’m in for 6.5 weeks of chemo and radiation, done concurrenly.  What I have, where I have it - it’s not typical to do surgery because surgery in the neck is risky, especially where I have it, and the prognosis with chemo and radiation is good. 

I’ve been through some difficult things in my life, but this will be the most difficult. I’m ready. I know what’s ahead of me and I can take it. I will make it. Fuck cancer. I got this.  

BTW, “Bag of crap” is a reference to something from NYPD Blue, a cop drama tv show from the late 90’s. Detective Sipowicz used to refer to any anything bad as a bag of crap. Everyone has a bag of crap they gotta carry around, and now this is mine. I’ll handle it. 

What is unfortunate is that the layout of this website has “Bag of crap” right next to the family photo. It looks like I’m calling my family a bag of crap. It’s too amusing to try and change now. 

Newest Update

Journal entry by Mike Leary

I had my second PET scan done on Monday. This is the one that was done because of some suspicious activity in my first PET scan, post treatment. I did not get the all-clear before. But today I did.

CANCER FREE.

No signs of anything. No suspicious activity. Physically, the site of the tumor, my neck etc., look as good as the doc could hope for, in his words. And the scan results are the same. All clear.

It's been a hell of a month or two leading up to this. As I got closer to the scan I had to try harder and harder to not let it dominate my thinking, and to assume the worst. I've had my share of bad news this past year so why was this round going to be any different? I was prepared for bad news. Expecting it, actually. But not today. Cancer free!

I'm a bit of a mess right now, coming out of all this. I will remember today as much as I remember the diagnosis. I had a hard time standing up after the conversation with the doctor. And I wanted to hug everyone. It was surreal. 

I'll never be totally free of this. I'll always have the worry and the possibility of it coming back. I also have the pleasure of some side effects to remind me daily. No saliva, the occasional migraine, and some serious scar tissue build up in my neck. But those are nothing, really. I'll take that and a cancer free scan every time. And what I do have, at least for today and for a while, is the knowledge that I am cancer free. I am officially a cancer survivor. 

Going forward I get a CT scan every six months and I have to see an ENT and my kidney doc regularly as well. This is routine from now on, and fine with me. 

Oh, and I had my second covid vaccine today. Overall a good day!

Fuck cancer. Happy St. Patrick's Day everyone. This irish guy is going to go back to work for a few more hours tonight and then have a peaceful, happy sleep.

Thank you for all the support, concerns, and prayers from all of you. 

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