Renae’s Story

Site created on June 18, 2019

Here is where everything started with Baby Boy Peterson. Be sure to read the first post for updated information. First at my 30 week Prenatal Visit Dr. Melissa Miller at St. Lukes found that I was measuring at 32 weeks instead of 30, so she then requested a growth ultrasound to make sure baby wasn't growing too fast. At the ultrasound appointment Dr. Miller reported that baby was growing just fine and is in the 45th %tile. The Radiologist referred them to see a specialist at Essentia because he saw a "double bubble" on the ultrasound which is a sign of Duodenal Atresia. 

So Chase I were seen at Essentia in Duluth by Marijo Aguilera, (a doctor rounding from the midwest fetal care center) where we had another ultrasound that was about an hour long. Dr. Aguilera's findings were in fact the same as what the radiologist thought he was seeing. Here is what Duodenal Atresia is: During normal fetal development the duodenum- the upper part of the small intestine- remains unobstructed, allowing contents from the stomach to flow freely through the baby's digestive tract. Duodenal atresiais a condition that occurs when a portion of the duodenum doesn't form. This condition results in a blockage that stops food or fluid from leaving the babies stomach. Duodenal atresia can be an isolated condition meaning no other defect or condition occurs with it, but it is also common in infants with down syndrome. About 1 in 3 babies born with duodenal atresia has down syndrome.  You can read more about Duodenal Atresia here: https://www.childrensmn.org/services/care-specialties-departments/fetal-medicine/conditions-and-services/duodenal-atresia/?gclid=Cj0KCQjwl6LoBRDqARIsABllMSalJP4ArNoGqsATkcrF21HGv3w3pfxPHNcQs3_lZFVU1QhZgxADeeUaAlxmEALw_wcB

So then Dr. Aguliera informed Chase and I that Baby Boy Peterson will have to be delivered in Minneapolis and have surgery shortly after birth to fix the blockage and then spend 2-3 weeks in the NICU at Children's Minnesota. Dr. Aguliera also informed us that Duodenal Atresia is not always an isolated condition and that babies with it often also have Down Syndrome or Heart Defects. This also means relocation to the cities at 37 weeks because if possible baby will be delivered as normal/ natural as possible. Baby now will have weekly ultrasounds and non stress tests to monitor how things are progressing. We had an appointment at the hospital in Minneapolis on Monday 6/17 to meet the entire team that will be taking care of us. We will be able to continue appointments at Essentia in Duluth until 37 weeks unless anything changes in our conditions.

Newest Update

Journal entry by Renae Carlson

Hello everyone I just called to the clinic down in Minneapolis to see if our amniocentesis results were in since we are on day 11 of the 10-15, we were anxious. I talked to Jamison our Genetic Counselor and those results came back completely normal. So baby does not have down syndrome which was excellent news for us to hear. Now we wait for the next step. At my weekly appointment this week my Dr. in Duluth gave me the steroid shot to help baby's lungs develop in case he comes early just to be safe. Thank you again everyone for the thoughts and prayers! 
Patients and caregivers love hearing from you; add a comment to show your support.
Help Renae Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Renae's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top