Jaela ’s Story

Site created on July 30, 2009

DEAR FAMILY AND FRIENDS,
THANK YOU ALL FOR YOUR LOVE, SUPPORT, PRAYERS AND CONCERN FOR OUR BABY JAELA. JAELA IS DIAGNOSED WITH HURLER'S SYNDROME MPS 1 AND WAS AT CHILDREN'S HOSPITAL IN LA FOR HER BONE MARROW TRANSPLANT IN 2008. PLEASE FEEL FREE TO SIGN MY GUESTBOOK.. THANK YOU ALL AND GOD BLESS YOU ALL..

LOVE,
ANJELA

Newest Update

Journal entry by Jaela Hernandez

💜Today is INTERNATIONAL MPS AWARENESS DAY. .
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MPS(Mucopolysaccharidoses) Genetic lysosomal disorder caused by the body's inability to produce specific enzymes. .
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💜JAELA needed to have CHEMOTHERAPY and BONE MARROW TRANSPLANT In order for her to live at 9 months old.. Jaela has MPS 1 which is Hurler's Sydrome. I have been blessed with god that she had been so strong and went through this till this day my daughter fights for her disease. She is now 100% Engrafting. Thanks to Children's Hospital and Kaiser. Today we celebrate MPS by wearing purple in honor of our very own Jaela Kristen!
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#jaelakristen #MPS1 #BlessedBaby #MiracleBaby #Mydaughter #Strong #raredisease #wearpurple #supportourcause #jaela #mpssociety 
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