Dustin’s Story

Site created on December 19, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Leah Gerbeth

This morning I woke up to a crying baby at 4:45 am.  I fumbled for my glasses and mask.  I moved 8 cords aside before I scooped him up and rocked him back to sleep. . . in our hospital room at Riley.  

Even though we are still here and not at home, I’m thankful. Thankful I can pick up and comfort my crying baby.  Thankful for Zach who is an amazing Daddy and husband.  Thankful for the nurses, doctors and other staff who care about Dustin and us.  Thankful for our amazing support team of family and friends.  Thankful to God who I know is working for Dustin’s good.

Thankful for time.  

Thankful for our son.  

Dustin is quickly closing in on 3 kilograms: the minimum weight for surgery.   We are beyond excited about this!  A week from today on March 3 they will do a cath for his heart.  On Friday , March 5, the surgeons will discuss their plan.  And Hopefully he will be getting his life saving surgery the following week. 

There is nothing Zach or I can do.  We are learning to let the doctors worry about the medical side and to focus on what we can control: loving Dustin unconditionally and enjoying every moment we get with him.  

So, happy 1 Month Birthday to our brave, strong warrior.  Keep growing, keep fighting and keep surprising us all with everything you accomplish. Momma and Daddy are so proud of you!  

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