Hello! Hope you are already healthy and at home:) My name is Victoria, and my daughter Alise has CHD large VSD.
We are from Russia, and here we can only have Glenn-Fontan sergery. But we hope to make full repair(in America). We are looking for any experience about full repair in America. Where did Avalyn make surgery? Can you share any links in social networks where I could find other parents with such problems? Thank you.
Thank you for the update!! Prayers continue to be uplifted for all of you. May God continue to bless Avalyn with healing, her comfort level and get her heart working the way He created the heart to work , on it’s own. Love n kisses to all of you💕😘😘😘💕
She’s such a cutie!
We continue to prayer & will lift up the pacemaker. I know it’s tough without having your family for comfort & support, due to the hospital precautions. I’ve been praying over the isolation & stress this hospital stay may cause.
We are from Russia, and here we can only have Glenn-Fontan sergery. But we hope to make full repair(in America). We are looking for any experience about full repair in America. Where did Avalyn make surgery? Can you share any links in social networks where I could find other parents with such problems? Thank you.