Ashlyn’s Story

Site created on May 16, 2016

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

Ashlyn was born with a congenital heart defect known as Pulmonary Stenosis.


Newest Update

Journal entry by Ashley Machiela

It's been a year since Ashlyn's pulmonary valve replacement and today she had her 1 year check up! 

Though she still occasionally battles exhaustion and her right ventricle is still partially dilated her heart is in the best shape EVER! In 6 months she will go back for another check up and she'll be fitted with a 24-48 hour holter monitor to wear. The hope is that she can get close to 10 years from this valve instead of 3-4. 

Since our last post.... well COVID-19! Our DC trip was rescheduled the night we were supposed to leave and then was cancelled in May. 

Our home has remained COVID free so far. We've been cautious and the kids have began the 2020-2021 school year learning from home.  Ashlyn obviously has underlying health issues and as a family we have been working together to keep healthy and to not bring cooties home. 

I know that our updates are normally longer and much more exciting but we haven't been up to much. We spent the summer trying new recipes and hitting the beach once a week.  
 

We hope everyone is doing well!
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