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Journal

June
9
2021

June 9, 2021

It's been a while since I posted - my new normal exists of 9 1/2 hours at night of hooked up to a machine which doesn't sound bad, until you start thinking of all the little things this limits - I'm physically limited to a 20 foot length drain line.  And it means I have to coordinate my starting and ending time based on my schedule - which inevitably means later "starts" in the morning.   The good news is that I've completed all my testing for the transplant, so hopefully that means, I'll be placed on the universal donor list soon.   In an effort to provide my daughter with some normalcy, we were able to travel overnight for the first time recently, with my supplies and 30 pound machine in tow.    I've had some pretty bad days, but I've had some good ones thrown in there too.  My hemoglobin is extremely low so what that means is that I'm always tired; always fighting nausea.  Keeping a good mindset is hard amid complaining clients, people whose expectations can't possible be met, disgruntled, overworked employees and overall lack of energy.  I know some good will come out of this, not because of me, but because God is Good and He and His glory will come through.    Tears are more frequent these days, which makes the smiles and laughter that much more important.  Thank you for your continued support and prayers through this difficult season.  

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Comments

  • Suzanne Tabor : Anita you remain daily in our thoughts and prayers💞🙏. As you know our anchor is Christ and our anchor holds!
    6/12/21
  • kim shufran : I accidentally just came upon this page and am so sorry to hear that you're unwell. A friend has been on this journey w kidney dialysis. Having support from one who has gone through it may be helpful. Let me know if you'd like to connect with her. She's a gem. Thinking of you and here as a support.
    6/12/21
  • Anita Quarles : Yes! Would love to catch up with you:)
    6/9/21
  • Angela Rutherford : I think of you and pray for you daily. I would love to get together if you are up to it.😊
    6/9/21