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Journal

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September
27
2019

September 27, 2019

Heard from the surgeon today. My heart is healthy enough for surgery. I have to check in at 6 next Tuesday.

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September
6
2019

September 05, 2019

Surgery date has been set for October 1st. I will have more details in the next few weeks.
I'm asking that there be no visitors the first few days while I'm in ICU and only preplanned visits after that. Please respect this request. I would love to receive letters/notes/texts/or emails of encouragement and positivity.
This will be the biggest battle of my life and it's scares the shit out of me. The love and support I've received from you all is what has kept me fighting.

August
23
2019

Untitled

I got to ring my bell! 💙🛎💙

August
14
2019

August 14, 2019

These results are great news! This was a retest due to discrepancies on the 1st test. It means the breast cancer gene or ovarian/uterine cancer genes were not passed on to me or my girls on my side of the family. 
August
9
2019

August 09, 2019

My A1C is 800 and has to be 1500 for treatment. No chemo this weekend and no ringing the bell. Everything pushed back a week.

August
2
2019

August 01, 2019

Aug 9th I get to ring the bell for my last chemo treatment. 8 treatments totaling 24 doses over the last 16 weeks. So, Sunday the 11th we're headed to Zarda BBQ in Lenexa for dinner to celebrate at 5. Come join us! I'm providing the cake.

July
26
2019

July 25, 2019

Many of you already know, but Wednesday I saw the surgeon that will perform the Cytoreductive surgery and hyperthermic intraperitoneal chemotherapy [(aka HIPEC) which is chemo heated up while my body is put into hyperthermia] for my colorectal peritoneal carcinomatosis. I have the option of having the surgery in 2 weeks, which would mean interfering with the start of school for the girls and Amaya's birthday, or I can have it in 6 weeks when I get back from Boston in September. If I wait, it means 2 more rounds of this stronger chemo. The girls have been through so much over the last three years, I have decided to wait until I return from my trip in September. After the surgery I will be in the hospital 10 to 14 days and then I will be on bed rest for 6 weeks with a feeding tube/port; total recovery 10 to 12 weeks. During surgery they will close my current stoma and replace it on the other side to allow for the feeding tube. I'm not one to ask for help so when I do, I am very specific in my needs. I ask that during those 12 weeks if you have any ailments, sore throat, runny nose, or "just allergies", you please stay away from me and my home...please! Once I am home, I will need someone each morning for an hour or two and each evening (someone who can start a bonfire, preferably😁). I will need help with basic day to day activities, as well as drivers. I do not want unannounced visits. I need my Army to be strong, as my strength is diminishing. Shed your tears before or after each visit...because there's no crying in baseball.
July
17
2019

July 16, 2019

My care team had their discussion about me today. It looks as though I'm now scheduled for chemo up until August 23rd per their notes. That would push the surgery date into October. I should know more or at least hear from one of the doctor's by Friday. This new chemo regimen is really kicking my butt so thank you everyone who has called or texted me! I hurt but I've got this! 🥊💙