Ami’s Story

Site created on December 26, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated; it is not a fundraising effort. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Ami Goodman

She said it would take me a week to write a post and it did. In my defense though, I was writing this a little each day of the week and thought I would post on Thursday to prove her wrong, but (what had happened was...) I glued all my fingers together. No joke. I was given permission to use scissors and some knives  with supervision last week but I attempted to fix something in my house with Gorilla Glue and it didn't go well. Another good laugh for me during a time when I need it the most - and it was before I heard about the lady putting it in her hair so mine wasn't as bad, just silly.

I'm headed into week 6 after surgery and  I can't believe that much time has passed already.  The first weeks home are a bit of a blur as I don't really remember much other than being so thankful to leave the hospital (which seems odd that I could have brain surgery and go home within 3 days - granted I did say I would give them a million dollars to let me leave) and needing help  with literally everything once I was home.  Needless to say, It has been a very challenging and painful time but with the help of my sister, David, my cousins Janice and Ilene, my girls, all of your thoughts from afar, and a few close friends who could come and just sit in the same room meant everything to me. On the funny side of it all, the girls kept telling me that I was hilarious on drugs so that's cool. 

As of now, I seem to be on the right track and am getting better each day. My eyesight is better now that the tumor is off my nerves. My speech is better for the most part  but I still can't say the word burrito correctly and have to concentrate a little harder on conversations to make sure I understand  all the words.  I'm walking a little faster which is good because 3 different friends have almost gotten me hit by cars while crossing my road:) I'm eating a bit more (some days better than others), I am typing a little faster and my fingers are actually lining up on the keyboard, and I am taking care of the girls a bit more.  I do still rest and need an afternoon nap, but that is all part of the healing process.

The next pieces of my puzzle are a Dr.'s appointment this Wednesday to try and confirm if I had a seizure a week after my surgery - a very scary incident for all of us that I don't care to think about -  which will determine if I can drive at the end of April (if no seizure) or June 16 (if a seizure). Then an MRI at the end of April with my surgeon to see if I'm healing and not growing any more insanity in my brain. 

Since I don't expect any other chaos (knock on the titanium that is now in my head),  I will ask David to close this site down. I am thankful to him for keeping you all up to date on my progress, it was too big of a surgery not to have a communication pathway to all my friends and family.  And now  that I can read and respond better to messages, feel free to email me at megoody2006@gmail.com or call/text (917-607-3490).

This has been an insanely unexpected journey and all of you have chosen to be with me each step of the way,  The amount of love, prayers, messages on here, calls, texts, cards, flowers, funny pictures, fireball videos, food/amazing sweets, clothing, stuffed animals, and thoughtful jewelry have helped me get through this. I will forever be grateful for each and every one of you who care so much about me and the girls who took the brunt of this emotionally . When I'm ready to take all my well wishes and inspirational cards off my bedroom wall, I  will place them in a very special decorative box so that I can be reminded of how much love surrounds me. It is truly overwhelming and when I think about it I get so emotional. 

This damn brain tumor thought it would take me out but I got home intact thanks to an amazing surgeon and I can start making my comeback. I've got big plans for when I get cleared which include getting my freaking hair colored the minute I'm able, getting back to work with the most amazing co-workers in the world, driving a car, training to PR the 1/2 marathon in Dec - or this year I would take just finishing it, planning an escape to somewhere warm, and drinking a giant beverage to celebrate this victory with literally anyone who wants to join me.  Perhaps not in that exact order - other than the hair coloring.

Sending so much (precious) love right back to you all. 

❤Ami

 

Patients and caregivers love hearing from you; add a comment to show your support.
Help Ami Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Ami's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top