Amber’s Story

Site created on May 19, 2018

Our babies were born premature at 27 weeks and are at UVM in Burlington.  We've started this page to put all the information in one place. 

Newest Update

Journal entry by Karen Peck

Lillianna is 11 months old today. She had a follow up appointment in VT with an MRI. Everything is going great, no fluid build up. The procedure she had in NH in December is working!! Her head is well shaped and her soft spot is closing up properly. She doesn't have to go back until August. We are all so excited for her!! She is growing up so fast and is doing some pretty cool things, things we weren't sure she would be doing. She has physical therapy a couple times a month and is doing great with that. The only thing we have to work on is her weight, she is about 3lbs under where she should be so we will start increasing her intake and get her fattened up!! We will be having a birthday party on May 18th and will incorporate a remembrance for our Angel Bailey Grace as well. On May 19th a mass will be said for her as well. We are so blessed and thankful for all the prayers our princess warrior has received!! 
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