Journal entry by Leslie Cavanaugh

Alyssa’s Remicade infusions are going well.  She’s gotten 3 so far, 2 more scheduled for this week and one for next week.  Her next follow-up appointment is September 6th.  That’s probably the longest stretch she’s gone between appointments.  Her original discharge from Cincinnati (May 31), Dr. Nelson wanted to see her every 2-3 weeks. Unfortunately between the steroid wean gone wrong, the declining blood counts, the adenovirus and now the GVHD, she just couldn’t stay healthy long enough between appointments. Strong prayers that this is her last setback for awhile (well, forever would be good, but I’m a realist).

Last week, we had an opportunity to see an exhibition volleyball match between WKU and UK.  The UK head volleyball coach (Craig Skinner) had reached out to Alyssa’s former coach, Travis Hudson, wanting to do some type of fundraiser/tribute for Alyssa. The idea turned into a wonderful evening of top notch volleyball, and they ended up raising over $4000 for The Bone Marrow and Cancer Foundation.  This is the foundation that helped us with our living arrangements when we were in Cincinnati for 3 months. 
This is actually the second donation that was made in Alyssa’s honor.  Her former club team, Kiva, (thank you Ron Kordes) made almost a $6000 donation back in June.  It’s been a very humbling experience for Alyssa to be the center of attention and our whole family is grateful for the support of the volleyball community.

https://bonemarrow.org/

https://t.co/DAs4O6M9VU

https://on.ncaa.com/mzd8z
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