Journal

Journal entry by Leslie Cavanaugh

FINALLY!! Very long day...and it looked for awhile she might not make it home today.  She was scheduled to get 2 units of platelets at 12am and 2am. Apparently there was some kind of emergency at the hospital and there were no platelets available for Alyssa. More were ordered and finally arrived at 3am for the first unit, second unit was given at 5am. The platelets were necessary for here lumbar puncture scheduled for this morning.  Her number has to be above 50. At 10am we were informed her number, at 52, was not high enough for the radiologist to give puncture, she would need more platelets. This was going to delay the whole discharge as she has to stay flat and in hospital for a minimum of 2 hours following the spinal tap. Dr. Maly to the rescue...he insisted she get puncture first and then given the platelets while she was doing her recovery.  So after a very long night and day, Alyssa officially was discharged around 6:30pm.  She is really under very little restriction right now...no mask, or limitations on where and what she can do.  In fact, we just got back from eating Mexican. She had 9 prescriptions filled at the pharmacy...for pain, nausea, GERD, infection etc.  so that was a bit of a reality check.  She may have to do more platelets on Sunday, but that can be done outpatient. 

The schedule for the rest of the month is blood work on Tuesday, IV chemo and platelets on Thursday and intrathecal chemo in Fridays, all outpatient. She says she feels good and no hair loss yet.  We are feeling incredibly blessed by how well she has responded so far.  Thank you again everyone for your thoughts, prayers and words of encouragement. 

Journal entry by Leslie Cavanaugh

Alyssa’s numbers are holding steady, no blood transfusion this week.  We’ve had some people ask about donating blood for Alyssa...there is something called a “Directed Donation” which we were in the process of getting this setup through the Red Cross when the lady tells me that my insurance may bill the patient for this.... ahhh what?? Turns out Red Cross adds a type of surcharge for directed donations that insurance companies may or may not cover (vs. just a regular anonymous donation) seems odd to me and I couldn’t get any kind of assurance from Humana that they would cover.  So...bottom line, just donate! There is always a need for blood. 

Alyssa had her second round of IV chemo today and celebrated by having a bowl of nachos and a milk shake. Her appetite has been pretty good and isn’t yet experiencing any kind of weird taste issues.  She will get platelets tonight to prepare for her intrathecal (spinal tap, lumbar puncture) chemo tomorrow morning.  The plan is to be home by late tomorrow afternoon.

Thank you everyone who has sent cards, texts, helpful hints, and prayers. We are all very appreciative. 

Journal entry by Leslie Cavanaugh

Compared to the fire drill that was going in the first 5 days, the last 2 days have been a nice change of pace.  Alyssa has continued to respond well to the chemo. WBC is around 3700.  Her hemoglobin is hovering around 7.2. (Her normal number before she got sick, was probably around 14, so her blood is carrying about half the oxygen which can cause her to be tired and winded). She will more than likely be getting a blood transfusion and platelets tomorrow as the doctor does not want to get it below 7. This is normal and expected for patients receiving chemo. Her appetite is good and she has thoroughly enjoyed the “restaurant” dinners that friends and family have been bringing every night.  It looks like Friday will be her discharge day, and after 10 days in the hospital, I know she is looking forward to actually sleeping and being in her own bed.  

Journal entry by Leslie Cavanaugh

WBC was around 4700 today, so still in the good range. Other blood counts are holding steady which is good.  She had 2 simultaneous IM injections today of a drug called PEG-Asparaginase. It’s been used for pediatric patients for years with good results, so they started using in young adults and were very encouraged. She will get this injection about every 4-6 weeks as it has a more serious side effect profile. So far so good on any chemo side effects like fatigue or nausea.  She(they) have a pretty strict cleaning/ hygiene standard for reducing the risk of infection...mouth rinse 4x a day (for potential mouth sores) and an almost Clorox-type wipes for her skin that she uses once a day.  Big thing is also keeping her picc line sterile. The nurses on 5 east are fantastic. And I kinda think Alyssa may be one of their favorites, which is not surprising. Keep positive vibes coming!

Journal entry by Leslie Cavanaugh

WBC down to 6000.  It was explained to us that she should be at zero in next day or two.  Then the new, healthier cells will start growing. She has a new drug being given tomorrow. This is one that has been very successful in pediatric patients, and has shown great results in last 10 years among young adults. Alyssa had lots of visitors this weekend, which really boosted her spirits but was a bit tiring for her.  Please keep the prayers coming, they’re working!

Journal entry by Leslie Cavanaugh

Doctor and NP just made rounds...awesome news.  Alyssa’s white blood count (WBC) which was over 240,000 at admission has now, after 1 round of chemo dropped to 21,000 !! (Normal range is under 10,000) certainly not out of the woods, and long road ahead, but very encouraging response to the chemo. They told us the drop would be dramatic, so definitely going in the right direction. Prayers are helping so please keep Alyssa in your thoughts.

Journal entry by Leslie Cavanaugh

First round of chemo in the books and Alyssa did great.  No signs of any nausea or extreme fatigue. She decided to go public with her fight and the outpouring of support has been overwhelming.  Please keep the positive messages coming, especially if you or someone you know is a leukemia survivor.  
Alyssa’s Story

Site created on September 7, 2018

Our beautiful 22 year old daughter was diagnosed on 9/5/18 with Acute Lymphoblastic Leukemia (ALL). She is a recent WKU grad where she played volleyball for 4 years, leaving WKU as their  most decorated female athlete ever. Alyssa is a fierce competitor and fighter.  We know with God’s grace and her tough attitude, she will see her way through this journey.

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