Allie’s Story

Site created on May 9, 2019

Allie learned at the young age of 10 years old that she had a genetic muscle disease called "multicore muscle disease".  This disease affects your skeletal muscles which in Allies case included her heart.  Medication has allowed Allie to live a normal life overall.  In 2012, she started to notice some additional weaknesses and more frequent palpitations. At that time, the doctors recommended that a pacemaker/defibrillator (ICD) be placed for backup.  On January  21st, 2016, Allies ejection fraction had decreased causing her to develop blood clots that moved to her brain which caused her to have a stroke.  Sanford's quick reaction extracting the clots allowed Allie to make a full recovery and be back at work in 1 week.  In the beginning of 2019, Allie's ICD went off 12 times, she had a heart ablation and had a new ICD put in to help her heart functions.  Since the procedures, Allie has not felt well and ended up in the doctors office several times  A followup appointment to the Mayo Clinic in Rochester on May 1st  found that the heart function had declined even more.  She was admitted to St. Mary's hospital for excess fluid on her heart and are evaluating whether she is a candidate for a heart transplant, which is a very extensive process.  The results of all the tests will be reviewed on Monday, May 13th, by the transplant team, which includes 30-40 physicians.  We will keep you posted on the results. Thank you for all your prayers and well wishes!

Newest Update

Journal entry by Landon Waasdorp

Its hard to believe that we have been home for more then 6 weeks already.  Allie is doing really good.  She went back to work at Hofer Signs part time for 2 weeks and has been working full time since the last week of September.  In addition, she has worked a little at Blarney Stone Pub and a couple liquor tastings.  On Monday,  Oct. 7th, we returned to Rochester for another heart biopsy and office visits.  They are very happy with how she is doing and continues to have zero rejection.  However, her white blood count was low so she is vulnerable of getting sick.  They think they may have over compensated on one of her meds so adjustments are being made.   Allie's golf tournament fundraiser scheduled on Oct. 13th was cancelled due to the inclement weather and are hoping to reschedule in the spring of 2020.  However, we had the raffle ticket drawing for the 2010 EZ-Go Golf Cart on Friday, Oct. 18th at the Leonard Country Club.  Congratulations to Rob Staves, who was the lucky winner.  Thank you to all that purchased tickets and supported Allie in this fundraiser.  I have been busy catching up with wellness appointments, friends and family and getting ready for sunny AZ!  Allie and I will be headed back down to Rochester for another monthly heart biopsy on Monday, Nov. 4th and another on Dec. 9th.  We are so blessed to have such great friends and family as we continue on this Gift of Life journey.  Thank you for all your gifts, love and prayers!  Momma Cindy  🙇‍♀️
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