Allan’s Story

Site created on April 13, 2020

It all came as quite a shock. It all started on Sunday, April 5th. Dad was heading to bed and noticed some blood in his urine. That was definitely not normal, so he went to the Parkston clinic on Monday. (We are so thankful he did!) His blood work was a bit abnormal and they referred him onto a urology specialist in Sioux Falls for further testing of the bladder. He wasn’t experiencing any pain or any other symptoms so we are very grateful that doctors decided to send him on to a specialist which could have easily been put on hold with the pandemic.

On Thursday, April 9th, Dad had a CT scan at the urology clinic. They didn’t even make it to the bladder test due to what they saw. The scan revealed a large tumor on his kidney and the tumor was growing up his vena cava toward his heart. These results meant that surgery was absolutely necessary and he needed more tests done to find out what type of treatment would be needed. That appointment also revealed that he would have to have surgery at Mayo Clinic in Rochester due to the complexity of all the different organs the surgery would effect. Thankfully Steve was waiting in the parking lot and they let him come in to hear the news with Dad.

On Friday, April 10th, Dad was scheduled for additional tests including a CT scan, MRI, and additional blood work. In the middle of a global pandemic, all these doctor appointments are quite interesting. Jenna’s friend made us all masks that Dad was able to wear and that we will be wearing on our trip to Mayo. Mayo called on Friday to let us know that we would be having a virtual visit (due to the pandemic) with the surgeon on Monday morning at 10:45am. Good thing we have all had lots of practice with virtual meetings lately! So we had a weekend wait on our hands over Easter. We tried to be as patient as we could and worked to make the best of it.

Monday morning came and we learned that the full kidney will be removed and that the treatment of his vena cava will be determined while he is in surgery. He will have four different surgeons in his surgery: urology, cardiac, vascular, and liver. We are definitely in a great place to be taken care of. Instead of doing a biopsy ahead of surgery, they will be doing their discovery during and after the surgery to determine if there will need to be further treatment. We don’t know 100% that it is cancer, but the doctor said he hasn’t seen a case like this where it wasn’t. Praying we will be the first!

His surgery is scheduled for Monday, April 20th and Steve, Laine, Dad, and I will be heading to Rochester on Thursday evening due to pre op appointments on Friday, Saturday, and Sunday. There are quite a few additional steps required due to COVID-19. He has to do a swab test on Friday as well as an additional chest CT scan the day before surgery. Due to all of this craziness, none of us will be able to go to the hospital at all during his stay. We will say goodbye at the doors. We are arming him with technology so we can check in often.

We are so grateful for all the support and prayers already and wanted to have a way to keep everyone informed as we progress through this trial. We appreciate any and all of your prayers and words of hope and encouragement.

More updates to follow...

Newest Update

Journal entry by Fredel Thomas

In a cancer journey, sometimes things seem slow to progress and other times you have to switch gears quickly. 

 Just since our last update, the plan has changed.  After another trip to Omaha, the trial that he was  planning to start, actually fell through and he wasn’t accepted because of symptoms he had experienced on previous treatments.  Dad’s response…. “Well, it must not have been meant to be.”  So when one plan falls through you just keep moving forward to find the next one.  So after a couple more appointments, a family get-together to talk it through, we decided to try a trial that was a bit more local.  It is in Sioux Falls and the name of it is TAK-186.  Dad had his first infusion Thursday, Feb 8 and the summary is… so far, so good.  

The rhythm of this trial is that one time per week, he starts with labs and an appointment at 7:30am, followed by time in the infusion center until about 3pm. Then he is admitted to the hospital for observation until they discharge him the next morning. Once they feel confident that there won’t be adverse reactions, he will be able to drop the overnight stay and it will be observation just on the day of the infusion.  Laine and Dad handled the first treatment and I think both were glad that it was pretty uneventful.  They were rewarded by a giant suite at the hospital for their overnight stay!

So today is treatment number two.  Again, it has been pretty uneventful. Uneventful is a great thing right now.  Today’s room is a bit more like a closet than a suite! :)  He will have scans to see how the drug is working against the cancer in about 7 weeks.

Thank you all for the prayers and support!

Dad will be on this trial until the next thing changes which could be today, next week, or in a few months. Living day-by-day, which is really all that God asks us to do! 
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