Alaina’s Story

Site created on September 23, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. Thank you for visiting. Alaina has suffered with constant mouth ulcers that keep her in chronic pain and is currently the reason why she is homeschooled. We have seen dozens of doctors and specialist with no ideas or ways to improve her quality of life. The last year it has escalated to horrible stomach cramps that has made her sick for hours and days.   last year I got the call that no parent ever wants to receive, Alaina had a mass on her left ovary and it needed to be taken care of immediately, her post surgery results said that it was a cellular fibroma with no uninvolved healthy ovarian tissue that resulted in a complete removal of her left ovary and tube. 

Jump ahead 11 months and today we were informed that Alaina has a 5 cm cystic mass of her right ovary that is causing her extreme pain again. We are waiting to here from mayo about the plan of treatment and what our options are. 

Newest Update

Journal entry by Mistee Gabel

Today we got some promise news on Alaina’s cysts, the one the doctor was really worried about (an evolving hemorrhagic cyst) was no longer present instead she grew a 5cm cystic appearing simple cyst. We have to do another ultrasound in a few weeks to make sure it’s gone. We made the decision to put her on a none estrogen birth control pill to hopefully stop her from growing cyst’s so rapidly. Alaina’s doctor put in a referral for the Mayo’s PRC program it’s an intensive pain management program that will be 3 weeks in Rochester. Alaina has an in-depth phone interview with them on Friday to figure out the best treatment plan for her chronic pain. They are pushing it through ASAP. We are at a constant 4-6 on the pain scale with Alaina’s pain in her mouth and cramping. We also are in the process of getting her into the in-depth discovery prognosis clinic to figure out a diagnosis and hopefully a way to improve her life.
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